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cml leukemia..gleevec drug

gleevec

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#1 pattyzz

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Posted 20 October 2014 - 08:10 PM

Im going to be 65 in nov. Medicare co pay for Gleevec 400 mg is 2000.00 a month under part B. My part D plan is 2800.00 the first month and 475.00 the next months, which is still to high for me. Is anyone out there over 65 and taking the drug Gleevec? What do you pay? Can contact me at patzmail49@gmail.com.

#2 Sneezy12

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Posted 21 October 2014 - 05:17 AM

I pay the same. Frank

#3 chriskuo

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Posted 22 October 2014 - 12:59 AM

Gleevec should be going off patent in less than 2 years and the Medicare Part D donut hole will be decreasing each year until it goes away in 2020.  That will reduce the cost in months 1/2.

 

Check your Part D plan.  In 2015, the drug copay should be capped at less than $7,000.  Have you verified whether this is the case with your plan?

If you have problems determining that, there are counseling programs (Senior Health Insurance Program - SHIP) which help answer questions for people on Medicare.  In California, the program goes by the name HICAP.



#4 Buzzm1

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Posted 28 October 2014 - 04:28 PM

JFYI: Picked up my Gleevec Rx today, and did a price check; Gleevec is now $8983 for 30 400mg tabs, up from $8213 in May.


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#5 Antilogical

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Posted 28 October 2014 - 04:53 PM

I noticed the cost escalation, too.  Guess they're trying to suck every last penny out of the market before the generics hit.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#6 jmoorhou

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Posted 28 October 2014 - 08:10 PM

The Leukemia society and local american cancer society may be able to help.  I have a supplemental insurance, Kaiser, so I pay about $4000 a year, I'm 62.


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#7 jmoorhou

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Posted 28 October 2014 - 08:11 PM

Does anyone know the exact date the protein part of Gleevec goes generic?


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#8 pattyzz

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Posted 01 November 2014 - 10:40 PM

Thank you all for useful information



#9 SandyG353

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Posted 09 December 2014 - 07:11 PM

My daughter, Robyn, pays very little co-pay for Gleevec because she works for the State of New Jersey and has a prescription plan.

I do not know whether everyone knows about filling a co-payment reimbursement to LLS for which you will be reimbursed a significant amount of money for the Gleevec , insurance, and I believe doctors visits.  Call LLS and find out about the form.  There is a date by which it must be submitted to receive the money.  I have heard that Gleevec is going generic in 2015.  I haven't heard it confirmed.  I heard it from another CML group that I belong to.

Sandy.







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