Discussion Forum Previous Successful Cessations
ChrisC, gerry, story, mikefromillinois, VickiW
Over the past months a number of us have ceased taking our TKI, whether forced to by a medical condition, or voluntarily in an effort to get off of the TKI. I am compiling information related to this to help show the rate of success, along with the rate of recovery. The information contained therein is dependent on your input; for the benefit of all, please participate. Thank you.
Cessation ................... Relapse .............. Restart .................... MMR ................... PCRU
09-27-2016 cleocans .... 11-xx-2016 0.33 ... 01-xx-2017 S 100mg 05-16-2017
10-01-2016 JLS extensive problems while on TKI; even worse with cessation (read his posts)
10-17-2016 Buzzm1 as of 10-17-2017 still TFR
10-30-2016 mscl ..................................... 01-25-2017 S 20mg voluntary restart
11-08-2016 Frogiegirl ... 02-01-2017 0.78 .. 03-16-2017 S 100mg .. 05-19-2017 0.02 .. 06-19-2017
11-15-2016 mdszj as of 01-08-2018 still TFR
01-10-2017 kat73* ...... 03-17-2017 0.47 ... 03-23-2017 S 50mg .. 05-04-2017 0.05 .. 06-12-2017 <0.01
04-07-2017 Floa7 ........ 06-30-2017 0.30 ... 07-01-2017 T 600mg
07-20-2017 janne ........ 12-11-2017 0.09 ... 12-18-2017 T 150mg
08-10-2017 Gail's ........ 11-xx-2017
10-06-2017 kat73**..... 12-xx-2017
11-03-2017 Lori's okay .. as of 01-15-2018 TFR
* on 70mg Sprycel <0.01 IS
** on 50mg Sprycel <0.01 IS
Cessation is the date the TKI was stopped.
Relapse is the date of loss of MMR along with PCR.
Date of Confirmation of relapse and PCR if applicable
Restart is the date TKI is restarted along with dosage.
Regained MMR is the date MMR is regained along with PCR.
Recovery is date of PCRU