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New L&LS Software Update Nov 2011

Started by Trey , Nov 07 2011 06:33 PM

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44 replies to this topic

#41 td1961

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Posted 10 November 2011 - 12:40 PM

Hi PhilB,

Might I suggest we all go over to Jerry's site where everyone is welcome (http://www.newcmldrug.com/)? It's a great site and certainly doesn't have all these bells and whistles to deal with. I will most assuredly not be giving any more donations to LLS to sponsor something that the patients don't like and can't use! LLS you have my permission to delete my board membership anytime you wish! It also might be a good idea for you to poll your patients to see what they want before taking such drastic actions with your SUPPORT BOARDS in the future!

Tracy

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#42 CallMeLucky

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216 posts

LocationCT

Posted 10 November 2011 - 12:53 PM

LLS didn't have an option on this. The vendor they license the software from made the upgrade and in order to maintain their support contract, they had to upgrade. I work in tech and see this all the time. It can be frustrating, but it is worth noting that all the old functionality is still there, it just looks a bit different and after you figure out where to go to get it things are pretty much the same. You do not need to use the social media features, in most cases it is not necessary to friend or follow someone. Just go to the CML board and go through the threads like you always did.

Jerry's site is wonderful, but if you recall Jerry's site just went through a major transformation in recent months. He had much older technology that became susceptible to spam attacks. He had to take his site down for a few weeks and completely rebuild it with new software. It looks nothing like it used to, people had to get used to it, and his traffic still does not not seem to have gotten back to the level it was - although I think it is starting to pick up again.

Unfortunately with technology, change is a constant and no one likes change. After some use, this new style will feel comfortable and it won't be much of a big deal anymore - try to stay with us, the support here is what keeps us coming back, not the functionality of the forum software.

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#43 Pin

Advanced Member

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202 posts

Posted 14 November 2011 - 11:44 PM

Is it just me, or is the like button gone already...?

Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14

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#44 jjg

Advanced Member

Members
80 posts

Posted 15 November 2011 - 12:37 AM

No I think it has gone. Bother that, I liked it!

The upgrade has been a huge improvement for iPad users, which I am sometimes, so at least I'm happy.

Dx Dec 2010 @37

2x IVF egg collection

Glivec 600 & 800mg

PCRU March 2012

Unsuccessful pregnancy attempt - relapsed, 3 months interferon (intron A), bad side effects from interferon

Nilotinib 600mg Oct 2012

PCRU April 2013, 2 years MR4.5 mostly PCRU with a few blips

April 2015 stopped again for pregnancy attempt (donor egg), pregnant first transfer, 0.110 at 10wks, 2.1 at 14wks, 4.2 at 16wks, started interferon, slow dose increase to 25MIU per wk, at full dose PCR< 1 for remainder of pregnancy

Healthy baby girl Jan 2016, breastfed one month

Nilotinib 600mg Feb 2016

MMR May 2016

PCRU Feb 2017