I am a newly diagnosed 42 yr old Chronic Phase CML patient. I was diagnosed on Mar 26 2011 with ~ 150,000 WBC. I did Hydro until Apr 11 and switched to Gleevec 400mg on Apr 13, so I'm about a week into targeted therapy - WBC on Apr 15 was normal (Gleevec keeping things stable after the Hydro -- does it work this fast??). I have a zillion questions , but I wanted to start with a question for any folks who are living with CML and are pretty active runners. Before my diagnosis, I was running about 15 - 20 miles/week, but my pace had slowed down by about a minute/mile for the past three months or so -- which is what prompted me to go into my GP to get checked out. Amazing to think, but running is the reason that I caught this thing before my annual physical!
Are there any folks out here who are pretty heavy runners (or perhaps distance bikers and/or swimmers) who are managing their CML with Gleevec? If so, I'd love to hear about your experience and potentially what to expect. I haven't experienced any noticeable side effects from Gleevec (yet?), but my running is already speeding back up (presumably because my RBC is heading back up to normal, cause it was a bit low at diagnosis). I'm hoping that this amazing therapy will allow me to return to original running form, because this particular form exercise is really important to my personal well-being. Is this a realistic expectation?
Thanks in advance for any feedback, and I look forward to getting to know others on the discussion board.