It is an ideological issue with the powers that be. Virtually every other developed country has the government negotiate drug prices.
Did Medicare ever have the ability to negotiate drug prices? I am not aware that it did.
The Veterans Administration negotiates drug prices for veterans and pays about 40% less than Medicare.
Is anyone else freaking out a little about Trumpcare?
Started by
JPD
, May 04 2017 04:01 PM
52 replies to this topic
#42
Kali
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Posted 29 June 2017 - 07:51 AM
Thanks for explaining this.
I thought Medicare used to negotiate but maybe they didn't. I read somewhere that it changed under Bush where they were restricted from negotiating. But I don't know enough about it to say what that was all about.
Anyway, I know a lot of us have a wish that Medicare could negotiate. Maybe someday!??
I thought Medicare used to negotiate but maybe they didn't. I read somewhere that it changed under Bush where they were restricted from negotiating. But I don't know enough about it to say what that was all about.
Anyway, I know a lot of us have a wish that Medicare could negotiate. Maybe someday!??
Diagnosed June 2014. WBC 34.6 and Platelets 710 at diagnosis. Bone Marrow Biopsy pre-op diagnosis: Leukocytosis. Post-op diagnosis: the same, Leukocytosis. No increase in blasts <1%. Quantitative BCR/ABL testing and formal chromosome analyses confirmed CML diagnosis.<p>Supplemental Report: Abnormal BCR/ABL1 FISH result t(9;22). Molecular test for BCR/ABL1 fusion transcript by RT-PCR positive for BCR/ABL1 transcripts, b3a2 at 133.561% and b2a2 at 0.001% and ela2 at 0.001%. Followup monitoring showed negative for ela2. BCRABL1 was 148.007 at diagnosis. Started Sprycel 100 mgm and blood work was normal at 3 weeks. MMR at 3 months: 10/4/14 was 0.106. Stayed in that range with one dip to 0.04 once and back to 0.1 range. Oct. 2015, BCRABL1 was not detected, following with 0.0126, 0.0092, <0.0069, 0.0000, <0.0069, 0.0000. Now on 70 mgm of Sprycel. Continuation of PCR test results: 07/07/2017, 0.0000%, now on 50 mgm of Sprycel, PCR 9/12/17 0.0074%, PCR 11/3/17 0.0000%, PCR 1/17/2018 0.0000%
#43
tadly
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Posted 29 June 2017 - 10:54 PM
Medicare covered in-patient drugs but not out-patient until Medicare Part D went into effect in 2006. Until then, Seniors use to get out-patient drugs on their own insurance plans separate from Medicare. I'm pretty sure the drug lobbyists got what they wanted at the outset of Part D on prohibiting Medicare from negotiating prices.
#44
Buzzm1
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Posted 30 June 2017 - 11:17 AM
Here's how much states would lose from the Medicaid cuts in the Senate healthcare bill
The Senate Republicans' plan to overhaul the US healthcare system could have a big impact on the healthcare funding that states receive.
The Senate's plan, like the one passed by the House of Representatives in May, calls for the dismantling of many of the provisions of the Affordable Care Act, the healthcare law also known as Obamacare, and would cut funding to the Medicaid program. Those cuts, if the bill becomes law, would hit some states more than others.
The nonpartisan Congressional Budget Office estimated that the plan — titled the Better Care Reconciliation Act — would result in 22 million fewer people insured by 2026 than the current healthcare system. Cuts to Medicaid would reach $772 billion by 2026.
Here's what those cuts would look like at a state-by-state level by 2026, as analyzed by the healthcare consulting firm Avalere:
Read more: https://yhoo.it/2s9SHZn
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
#45
scuba
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Posted 01 July 2017 - 07:10 AM
JPD any chance you want to move west.....I have a beautiful house on a golfcourse....pools......really nice.....because I'm ready to apply for the California Death with Dignity act.....if I have to take more than 200 gleevec....life is not worth it
Janis - switch to 20mg Sprycel. You won't have any side effects you can feel and you will remain PCRU. Gleevec is not worth dying over ...
Diagnosed 11 May 2011 (100% FiSH, 155% PCR)
with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein
Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate
6-8 grams Curcumin C3 complex.
2015 PCR: < 0.01% (M.D. Anderson scale)
2016 PCR: < 0.01% (M.D. Anderson scale)
March 2017 PCR: 0.01% (M.D. Anderson scale)
June 2017 PCR: "undetected"
September 2017 PCR: "undetected"
#46
jmoorhou
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Posted 01 July 2017 - 12:13 PM
Thanks Scuba, did Sprycel affect your hair, looks like you've got a good head of hair.
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis
#47
MACELPatient
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Posted 18 July 2017 - 01:12 PM
Republican Healthcare bill died in the Senate today as did any possible attempt for a partial repeal.
#48
rcase13
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Posted 18 July 2017 - 04:55 PM
Relieved, I am so worried they will bring back yearly and lifetime limits.
I live in a red state so the Republican legislature here would opt out within seconds of it passing.
I live in a red state so the Republican legislature here would opt out within seconds of it passing.
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#49
chriskuo
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Posted 19 July 2017 - 02:59 AM
We haven't heard the end of this because the Republicans are still planning on usual the repeal of Obamacare in the
2018 elections.
2018 elections.
#50
r06ue1
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Posted 19 July 2017 - 05:34 AM
They want to repeal it and if that fails, they will probably seek to cut funding for it. They have already released a budget that cuts billions from Medicaid and other programs so killing "Obamacare" may be their strategy now.
08/2015 Initial PCR: 66.392%
12/2015 PCR: 1.573%
03/2016 PCR: 0.153%
06/2016 PCR: 0.070%
09/2016 PCR: 0.052%
12/2016 PCR: 0.036%
03/2017 PCR: 0.029%
06/2017 PCR: 0.028%
09/2017 PCR: 0.025%
12/2017 PCR: 0.018%
Taking Imatinib 400 mg
#51
chriskuo
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Posted 19 July 2017 - 09:20 PM
The monster that won't die
They will kill cancer patients one way or another
They will kill cancer patients one way or another
#52
DebDoodah22
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Posted 22 July 2017 - 11:35 AM
With apologies to my politically conservative friends,
Trumpcare is precisely why i have not been able to bring myself to be on this site for the last 8 months....I am very concerned for myself and the many fine people here. For now, at retirement I am looking at coverage under private employer supplemented insurance with supplemental Medicare. But I fear that without government support of fair practices, private insureres focusing on shareholder outcomes and profits, will find ways to reduce coverage to everyone with expensive treatments. I'm afraid to retire, even though Im at an age where that would make sense. There seems to be no humane solution developing and little talk of true cost reform. With this expensive diagnosis, I feel like part of the problem and can only hope that integrity and compassion will prevail. We live at the mercy of the system and i am both grateful and mad as hell.
Trumpcare is precisely why i have not been able to bring myself to be on this site for the last 8 months....I am very concerned for myself and the many fine people here. For now, at retirement I am looking at coverage under private employer supplemented insurance with supplemental Medicare. But I fear that without government support of fair practices, private insureres focusing on shareholder outcomes and profits, will find ways to reduce coverage to everyone with expensive treatments. I'm afraid to retire, even though Im at an age where that would make sense. There seems to be no humane solution developing and little talk of true cost reform. With this expensive diagnosis, I feel like part of the problem and can only hope that integrity and compassion will prevail. We live at the mercy of the system and i am both grateful and mad as hell.
#53
rcase13
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Posted 25 July 2017 - 06:03 AM
Looks like they vote again today. This time McConnell plans on buying votes.
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
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