Had my "every two years appointment" with my oncologist yesterday. She suggested that my next appointment, now scheduled for three years from now, would preferably be conducted via Smartphone. She has already begun doing this with a few of her other patients.
Another sign of things to come ...
Started by
Buzzm1
, Sep 07 2016 01:29 PM
6 replies to this topic
#1
Buzzm1
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Posted 07 September 2016 - 01:29 PM
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
#2
MarCap73
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Posted 07 September 2016 - 02:12 PM
Buzz, that is a very interesting approach to medical care. Would you go to a lab for your blood draw, she'd have the results when you "meet" and just talk over the results?
Dx: 11/2015
Sprycel: 100mg
May-17: 0.0095% IS
Aug-17: 0.0048% IS
Nov-17: 0.0066% IS
#3
Buzzm1
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Posted 07 September 2016 - 02:54 PM
Buzz, that is a very interesting approach to medical care. Would you go to a lab for your blood draw, she'd have the results when you "meet" and just talk over the results?
MarCap73, my oncologist emails me every three months with the PCR BCR-ABL results of my blood draw ... usually within 10-17 days from testing. In the meantime, she's very responsive to any questions I might have via email. My CBC blood diagnostics, going back 4-5 years, are available online within 24 hours, or less, of testing.
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
#4
tiredblood
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Posted 07 September 2016 - 05:40 PM
Can I get out of a patient Copay by using telehealth?
#5
Trey
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Posted 07 September 2016 - 08:04 PM
Phlebotomist App:
https://play.google....simulator&hl=en
Draw simulated blood, send to your simulated Onc, and get a simulated opinion all within one minute.
#6
gerry
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Posted 07 September 2016 - 11:36 PM
Star Trek Voyager predicted the future - hologram docs. 
#7
r06ue1
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Posted 08 September 2016 - 07:46 AM
Nah, doctors will be replaced by Robots, Dr. Watson (IBM's super computer) has been diagnosing Cancer at far better rates than Human doctors so it is just a matter of time.
08/2015 Initial PCR: 66.392%
12/2015 PCR: 1.573%
03/2016 PCR: 0.153%
06/2016 PCR: 0.070%
09/2016 PCR: 0.052%
12/2016 PCR: 0.036%
03/2017 PCR: 0.029%
06/2017 PCR: 0.028%
09/2017 PCR: 0.025%
12/2017 PCR: 0.018%
Taking Imatinib 400 mg
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