I have a problem. My onc really wanted me to be on 100mg sprycel but settled for 70 mg as my numbers have fallen to 0.014. My cardiologist diagnosed CHF 6 months ago and it is getting worse. She thinks it is the sprycel that is causing this. My cardiologist said I need to decide how to proceed. She has increased my torsemide to 80mg per day and my potassium cit to 4 10meq pills per day trying to get rid of so much fluid.
I have had cardiac issues for close to 20 years that include CAD (4x cabg) in 2012, CVA in 2010, valve problem and aortic aneurism ( I know spelling). I also have diabetes that I am struggling to keep up with. Sleep apnea is another problem. I am currently legally blind due to retina bleeding caused by a reaction from gleevec at about 6 month after dx in July 14.
I am currently having some trouble coming up with the $2,400.00 in co-pay for the sprycel and would like to cut them in half and therefor use only 15 pills per month. When I suggested this to my onc he said he would rather I take 1 70mg every other day. Does this make sense rather than keep a constant 35mg going all the time.
I feel like I am being asked to choose either dying from heart failure or CML. Any advise would be greatly appreciated.