Posted 21 October 2015 - 01:23 PM
Went in for my Onc CML quarterly blood test yesterday coupled with my PCP blood tests in advance of my Oct. 30 annual physical.
The person checking me in ran off six barcoded labels and I proceeded to the blood draw area.
The check-in person brought a seventh label for me into the blood draw area.
The technician preparing to do the blood draw noticed that there were two CBC labels, one for each doctor, so she pulled one of the CBC labels, and wrote a note that the results should go to both doctors.
Nevertheless they processed two CBC's, along with two of most everything else ... and the results were slightly different on most all of the tests and markedly better on some of the tests, ... so, do I get to pick and choose the best, or should I just average?
WBC was 10.1 on one and 10.6 on the other
Platelets 344 and 297
Glomerular Filtration Rate 60 and 56
Creatinine 1.19 and 1.25
term this "the luck of the draw"
both results in all cases were entered into my medical record history.
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt