I have had CML since 2006, more than eight years ago. I am planning an early retirement (at 63; I am now 61), due in large part to my desire to enjoy life free from the shackles of having to go to work every day, as I have since I was a paper boy in my teens.
I consider myself fortunate to look forward to a pension, as well as Social Security, in addition to money set aside in a 401(k).
That being said, planning for retirement is a near impossibility due to the escalating cost of TKIs. From what I can tell, the Medicare system does not cover our treatment; rather, we can expect to pay a lot each year for our TKIs (mine is Iclusig), perhaps as much as $10,000 or more for that drug, alone.
If I find that I have to raid my 401(k) each year just to pay for drug and related costs associated with my CML, I am going to draw a line in the sand. I am going to refuse to allow this chronic illness to so deplete my savings that I leave nothing to my two beautiful adult daughters. I refuse to let that happen. If it means not having the ability to pay for my TKI each month, so be it. Sure, I will seek alternative sources of funding, if they are available to me. But with a pension, Social Security and a 401(k), I doubt I will qualify until I am left penniless. Again, I refuse to let that happen.
The line in the sand has been drawn.
Anyone else facing a similar future in or near retirement?
Thanks for listening.