Posted 30 April 2014 - 11:21 PM
maybe take a look around for Medicare Advantage plans, or some other form of Medicare Supplemental plan, just so you know ... I don't know what the differences are, but I do know there are a lot of plans.. From what you said you have a >$4200/yr. out-of-pocket expense for Sprycel; that's $350/month above whatever you are paying for your Medicare Supplemental, plus the $30?/month Medicare Part D. Wouldn't hurt to shop around .. you never know .. maybe someone else here has some insight ... come to think of it ... my former employer does pay for a chunk of mine ..can't remember the details ...
in regard to Medicare Rx drug cost. . thanks to Bush/Obama agreements with Big PhRMA, Medicare patients are charged the highest prices in the world for Rx drugs (paid for by taxpayers) ... no it isn't fair ... with less than 5% of the world's population, we consume about 70% of the world's Rx drugs ... Medicare Rx drugs, is a large share of the market, and are huge profit makers. We would think both parties would want to change it? .lol.. no, Big PhRMA is the largest lobbyist in Washington DC. .. the re-election campaign money is too good to pass up
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt