Went to see my onc yesterday and received my test results: CBC all normal, PCR is negative (0.000 IS).
Onc suggested now doing yearly testing. I reminded him that the Stanford specialist he sent me to, who approved my doing a one-person trial of going off Sprycel after reaching PCRU 11 months post dx, then maintaining PCRU without fluctuation for two years, had said to continue PCR testing twice a year for the rest of my life. So, I'll see my onc again in April.
Maybe someday I'll be comfortable enough to be tested once per year, but for now it appeases my concerns when I seem to be bruising easily or there are other CML-resembling symptoms: I say to myself, well, if it's that again, it'll show up in the next test.
As for the ongoing fatigue, hearing loss, etc., I just continue to try to live life as the gift it is, and am enjoying — cheers!
That's my report. My best wishes to every fellow member of this board: may you experience ever-increasing health and well being. Thank you for being part of my CML and post-CML journey.
dx Oct. 2008
7 mos. on/off Gleevec
started Sprycel 100 mg, then in 4 mos. was PCRU