Shart darts.
2 years off medication, and counting my blessings
Started by
ChrisC
, Sep 18 2013 08:04 AM
22 replies to this topic
#21
Trey
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Posted 29 September 2013 - 09:13 PM
#22
hannibellemo
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Posted 29 September 2013 - 09:25 PM
Silly question, that's what I figured.
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#23
Ludwigh
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Posted 01 October 2013 - 12:00 AM
Chris, you give me hope for a life drug free. I was in bad shape when diagnosed (not blastic) but borderline Chronic /Accellerated.
Huge Spleen, WBC over 200K, Platelets 1.2 Million, Blasts 8%, Basofils 22%, Sokal: Not good. Failed Gleevec after 14 months. Went on sprycel. After 4 months it was under detectable limits and I have been over three years PCRU. I think I will will wait 5 or 7 years before I attempt discontinuation. For the most part I tolerate Sprycel well. Even if I went off I maintained PCRU I think that darkness would always be on the edge of my mind.
Congratulations, you are a pioneer.
Terry in Colorado
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