OMG finally someone talking about hair loss!! I was diagnosed in January, and was put on Gleevec. My hair started falling out. I had long hair down the middle of my back, and suddenly it was everywhere, all over the floor, clogging the bathroom sink and the tub and it was thinning out so bad. I talked to my doctor who was surprised and said that he didn't think that was a common side effect. After actually looking at the side effects, I found out that it is a common side effect but the doctor hadn't had any patients report any issues with it. So right now, I am down to a small bob, and later this week I am getting it cut even shorter because I can't handle the hair everywhere. I have noticed that it has started to slowly grow back, but I am going onto a higher dosage of gleevec and expect that any regrowth will be halted. I have also noticed that the texture is also different, its almost coarse. At least what hasn't fallen out is, not really sure yet what the status is on the regrowth, its still too short to determine. My diet may be effecting the hair loss and Ive no doubt that stress plays a part as well.
I think the hardest part of loosing my hair is actually seeing clumps of it in my hands when I wash it. I know it is thinning out and it upsets me, but there is nothing I can do about it, so I have been trying to eat better and take care of myself since the diagnosis and figure eventually the hair will grow back, its just a waiting game.
It was nice to see people actually discussing it, Ive found nothing anywhere else on the subject.