Hey everyone,
It has been awhile since I posted on this website, actually it was back in August right before I started my SCT and I wanted to share my results with everyone on here. This section of the LLS website and stem cell transplant have been fantastic and I can't say enough for everyone on here being so supportive of one another.
On that note, I have been able to achieve a major molecular response with no evidence of the BCR-ABL chromosome with my cytogentics. My PCR is .000007 and my doctor is extremely pleased with how well I am doing with only have a rash on my chest and back which is manageable and feeling great otherwise. My biggest challenging is not to lose much more weight, I think I have lost 10 lbs due to having no taste buds but I am keeping my protein and fluid levels up with Boost drinks, smoothies, water, and eating small meals to keep everything moving along. My doctor said this is the exact response you want to have at this stage of the game and will repeat the BMB on + 90 which is at the end of November. You know you are doing well when your medical team is all smiles and appear very confident about your future, makes you feel a whole lot better. We all know when things are going wrong based on our doctor's body language.
On a side note, my WBC are holding thus far between 4.0-5.5. My platelets between 113-135 which is great since it has been many months since I was over 35,000. My HGB is the last to come back since I am changing blood types. I am 9.8 right now with the help of my 2nd transfusion last week which is to be expected per my medical team but should begin to rebound here in the next month or so. No biggie there, the last step and ofcourse will monitor for GVH during this time period but ok on that for now.
All in all, I feel very fortunate and blessed and have appreciated all the support surrounding me. I know this battle is not over but sure does feel nice to be able to say I have reached a MMR, something I have read other stating but nothing I could even come close to saying since October of last year.
Thanks again,
