Hi ~
I just met with my oncologist and I have achieved MMR. I was diagnosed in 11/10 with 17.82% PCR and today it is 0.002%!
Also, my Light the Night team raised almost $7500 for LLS.
This is definitely one of my better weeks in Cancer World!
Nat
Posted 27 September 2011 - 01:47 PM
Hi ~
I just met with my oncologist and I have achieved MMR. I was diagnosed in 11/10 with 17.82% PCR and today it is 0.002%!
Also, my Light the Night team raised almost $7500 for LLS.
This is definitely one of my better weeks in Cancer World!
Nat
Posted 27 September 2011 - 04:19 PM
Congratulations!!! I'm happy for you.
Posted 27 September 2011 - 04:44 PM
That's awesome, congrats!
Posted 27 September 2011 - 05:09 PM
Way to go ! Keep up the good work !
Dx'd: 8/2008. Started Gleevec 400 mg 11/08.
Drug break 2011.
Started Tasigna 4/11 450 mg.
Reduction to 300 mg Tasigna 1/2012.
PCRU 9/2012.
12/2012 Detectable.
PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)
12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.
4/2016 PCRU. Still at 150 mg Tasigna.
CESSATION: stopped treatment 7/20/2017.
9/6/2017: barely detectable at 0.01%.
12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.)
12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.)
Posted 27 September 2011 - 05:51 PM
Hi: Congratulations on your good news about you and your team. We all want to see this battle won with CML.
Susan
Posted 27 September 2011 - 06:14 PM
Congratulations! It's a great feeling isn't it? Your field isn't development is it? What a super fundraiser you are! Thank you for what you are doing for LLS and all of us!
Pat
1
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 27 September 2011 - 09:05 PM
What great news Nat! Long life to you!!!!
Teds
Posted 27 September 2011 - 09:53 PM
Thanks, everyone. Pat, I have no experience with fundraising (I am a divorce attorney) but I am blessed with a wonderful group of family and friends who are very supportive. "Light the Night" was so uplifting. Picture about 7000 people with illuminated balloons strolling through a wooded area at dusk. It was spectacular!
Posted 29 September 2011 - 05:17 AM
wow !! great news congratulations .. My mother just touched her one year mark and has achieved Complete Cytogenetic Remission too !! I am really really grateful to God for this !!!
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