Ok..I was diagnosed at the end of June of this year with CML. I have been on Gleevec 400 mg since the beginning of July, now about ready to finish my second bottle. I have read several things on here that have helped me to deal with the side effects of the Gleevec, but I am feeling worse lately and wanted to see what advice for what will work and what doesn't work. I go back to my oncologist/hematologist in Spet on the 15th for complete molecular blood work but I'm in so much pain I was hoping for some suggestions now. My symptoms I'm having lately that have been really bad are the Leg and arm pain. Sometimes my Legs are so weak, and are hurting so bad all I can do is lie in bed and not move. I feel like they are so heavy and just this horrible achy pain through them and then severe shooting pains through my legs and arms. I have a 5 year old daugher and I want to be bale to do more with her , I have the constant fatigue as well but I figured that was always going to be there. I don't know anyone else taking this and these forums are my lifeline for all info on how to deal with this disease.
So in essence, ANY advice you can give me would be much appeciated. I tried to take Aleeve for the pain but it doesnt help and neither does Ibuprofen. Also, I know what the Dr. told me about Gleevec but what does it exactly do?? Is it a form of oral chemo? And why are the side effects so prevalent and unforgiving?
Again..any help would be great..I had the digestive side effects and still am dealing with those and the itches..but the limb pain, and weakness seem to be the worse yet for me..so any help on these would be great! Thanks guys so much! I can't wait to find something that works..I'm really getting tired of being the prone position.