2 replies to this topic

[sdl722]

Hi all, looking for some positive vides from everyone.

On Tuesday I found out that I had achieved Complete Cytogenetic Response when my 3 month BM came back 0/20 (it was 20/20 at diagnosis and FISH at diagnosis was 99.5%).  Woo hoo!  PCR also down from over 100% at diagnosis to 8.54%.  Tasigna is doing it's job.

At the same time, the last few days I have been dealing with the frequent need to urinate, especially after drinking water.  I emailed my nurse and now MD Anderson wants me to come in tomorrow to get another blood test and a urinalysis and to see one of their interns.  I am going to do the blood test fasting so they can get a better look at the glucose.  So far my glucose has been slightly elevated but that was while not fasting.

Ugh, just when I get to the big milestone of CCyR, I have to deal with this.  I'll be keeping my fingers cross tomorrow that it is nothing serious.

Thanks everyone,

Stephen

[janne]

Stephen,

First of all, congratulations on your PCR/FISH results ! Good job! On the urination issue, polyuria, could it be extra caffeine in your diet ? or high doses of B2 or Vitamin C could be associated with this..Let's just think about the simple things that could be causing this and hope for a simple answer. Let us know how your lab/doctor visit turns out. I know it seems like we should only have to concentrate on the major issue at hand and that is the FISH/PCR numbers going in the right direction in a timely manner....it would be great to have everything else just stay on hold for now.That is what I think...like when the dental hygienist cracked my tooth....not something I went in for..... I am sending prayers your way ..hoping for a great outcome....Janne

ADDENDUM: There is also this thread from previous: http://community.lls.org/thread/3169

Message was edited by: Janne

[sdl722]

Thanks Janne.  I appreciate your words.  I am definitely trying to think about what little things it is that could be causing.  I'm hoping its just some small infection or just my body readjusting to the heat of Houston.  My wife and I were on vacation up in Maine last week (much, much cooler), so maybe I am just struggling with the hot weather or something like that.  Or maybe I am just over reacting (who doesn't when they have CML).  Hopefully I will know more tomorrow.