First Test 196 runs, Second Test 319 runs, Third Test an innings and 242 runs. England lead India 3-0 and are now officially the world's top rated team in test cricket! Yippee! Oh, and my PCR has gone up a bit, but it's still in my usual 0.02% to 0.04% range. As usual I've been hiding whilst waiting for my results (and following the cricket). Did I miss anything?
Great Test results!
Started by
PhilB
, Aug 15 2011 11:02 AM
13 replies to this topic
#2
hannibellemo
-
- Members
-
- 728 posts
Advanced Member
- LocationNorth Central Iowa
Posted 15 August 2011 - 12:37 PM
Great news, Phil! I just got my results back today. 0.006% equivalent to 0.02 on IS. Last time was 0.05 so heading in the right direction!
You'll just have to read to see what you've missed - were you around for the moose?
Please look at my latest post "Got Good News..." and see if you can answer my question? What is considered PCRU on IS? How many '0' place holders behind the decimal point are there? 2, 3, 4? I hate maths! Thank you in advance...
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#3
CallMeLucky
-
- Members
-
- 216 posts
Advanced Member
- LocationCT
Posted 15 August 2011 - 12:57 PM
Glad to hear things are stable....
Date - Lab - Scale - Drug - Dosage MG - PCR
2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%
2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%
2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%
2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%
2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%
2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%
2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%
2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%
2013/Mar - Quest - IS - Sprycel - 60-70 - 0%
2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%
2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%
2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%
2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%
2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%
2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%
2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%
2014/Jul - Genoptix - IS - Sprycel - 100 - 0%
2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%
2014/Dec - Genoptix - IS - Sprycel - 100 - 0%
2015/Mar - Genoptix - IS - Sprycel - 100 - 0%
2015/Jun - Genoptix - IS - Sprycel - 100 - 0%
2015/Sep - Genoptix - IS - Sprycel - 100 - 0%
2015/Dec - Genoptix - IS - Sprycel - 100 - 0%
2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%
2016/Jun - Genoptix - IS - Sprycel - 100 - 0%
2016/Sep - Genoptix - IS - Sprycel - 100 - 0%
2016/Dec - Genoptix - IS - Sprycel - 100 - 0%
2017/Mar - Genoptix - IS - Sprycel - 100 - 0%
2017/Jun - Genoptix - IS - Sprycel - 100 - 0%
2017/Sep - Genoptix - IS - Sprycel - 100 - 0%
2017/Dec - Genoptix - IS - Sprycel - 100 - 0%
#4
BethG
-
- Members
-
- 4 posts
New Member
Posted 15 August 2011 - 02:47 PM
Glad to hear things are still trending well for you! I hear 'ya re the anxiety waiting for results! :-)
Oh, and Go England.
BethG
#5
scuba
-
- Members
-
- 1,044 posts
Advanced Member
- LocationHouston, Texas
Posted 15 August 2011 - 04:42 PM
Hey - PhilB - try Curcumin. You'll get the PCR down more.
Oh and my FISH came back from M.D. Anderson today. FISH = Zero. With the molecular result they said I was in CCyR - but want to do a bone marrow asp. to look into it further. Seems 20mg. Sprycel should not cause this fast a response in two months.
Don't mean to hijack your thread - but it is titled: "Great Test Results".
Curcumin baby ! yeah. Brings the Mojo back.
Diagnosed 11 May 2011 (100% FiSH, 155% PCR)
with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein
Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate
6-8 grams Curcumin C3 complex.
2015 PCR: < 0.01% (M.D. Anderson scale)
2016 PCR: < 0.01% (M.D. Anderson scale)
March 2017 PCR: 0.01% (M.D. Anderson scale)
June 2017 PCR: "undetected"
September 2017 PCR: "undetected"
#6
jjg
-
- Members
-
- 80 posts
Advanced Member
Posted 15 August 2011 - 05:24 PM
Well done England!!!! After suffering through the ashes its hard to believe but I really wanted you guys to knock off India. The way India thinks it owns the game just because it has the purse strings gives me the sharts....you can't blame glivec for everything. Make sure you celebrate long and hard, just like you did in 2005!
Dx Dec 2010 @37
2x IVF egg collection
Glivec 600 & 800mg
PCRU March 2012
Unsuccessful pregnancy attempt - relapsed, 3 months interferon (intron A), bad side effects from interferon
Nilotinib 600mg Oct 2012
PCRU April 2013, 2 years MR4.5 mostly PCRU with a few blips
April 2015 stopped again for pregnancy attempt (donor egg), pregnant first transfer, 0.110 at 10wks, 2.1 at 14wks, 4.2 at 16wks, started interferon, slow dose increase to 25MIU per wk, at full dose PCR< 1 for remainder of pregnancy
Healthy baby girl Jan 2016, breastfed one month
Nilotinib 600mg Feb 2016
MMR May 2016
PCRU Feb 2017
#7
Marnie
-
- Members
-
- 396 posts
Advanced Member
Posted 15 August 2011 - 06:41 PM
The only important thing that you missed was that Trey crowned me "Queen for a Day." The coronation was an outstanding event.
#8
Happycat
-
- Members
-
- 5 posts
New Member
Posted 15 August 2011 - 06:57 PM
Congrats, Phil! Glad you found something to keep your mind occuppied while waiting for the results. One cricket match ought to keep you busy for what, a month??
Traci
#9
hannibellemo
-
- Members
-
- 728 posts
Advanced Member
- LocationNorth Central Iowa
Posted 15 August 2011 - 09:46 PM
Marnie neglected to mention - the moose was crowned "king"!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#10
PhilB
-
- Members
-
- 130 posts
Advanced Member
Posted 16 August 2011 - 07:18 AM
I just tried to catch up on the moose postings surreptitiously at work. Big mistake!
#11
everonward
-
- Members
-
- 1 posts
New Member
Posted 16 August 2011 - 08:41 AM
Great news about the steady result - had my PCR drawn today so 14-21 days of waiting. Not half as stressful as daughter waiting to hear on her A level results - will it be Imperial College London or The University of York.
Fantastic Cricket - I agree but shame about the Rugby (was in Wales last weekend as well)
Marian
#12
grannyd
-
- Members
-
- 0 posts
New Member
Posted 16 August 2011 - 12:10 PM
Congrats on your results!!! Glad you could come out of hiding!!! Great there was something to divert your attention--waiting is the absolute worst!! Prayers, granny d
#13
PhilB
-
- Members
-
- 130 posts
Advanced Member
Posted 16 August 2011 - 02:21 PM
Actually getting the results is the absolute worst (unless they're wonderful). You don't realise how wound up you were until you fall apart afterwards.
#14
PhilB
-
- Members
-
- 130 posts
Advanced Member
Posted 16 August 2011 - 02:23 PM
Sorry. I apologise to everyone who has had bad results which is far, far worse by several orders of magnitude.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
