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Fish 3 finally!

Started by Cathy , Jul 21 2011 06:57 AM

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3 replies to this topic

#1 Cathy

Advanced Member

Members
64 posts

LocationWilloughby oh

Posted 21 July 2011 - 06:57 AM

Good Morning, After 14 months and all 3 drugs, lots of problems I got my Fish results back yesterday and I'm at 3! Lowest ever!!! I'm on Sprycel right now and have been fighting myelosurpression for about 6 weeks! So I also had to go off my medicine again, which makes me a bit nervous since last time I went off tasigna my numbers spiked back to 57 pretty quickly! So I'm praying that the sprycel will hold the cells down, until I can get my numbers back up and back on my medicine! It's exciting to think I may actually meet the 18 month mark for a 0 for my fish! I seem to be a turtle! And it's so frustrating! But I'm very happy today and celebrating my accomplishment!

Have a great day!

Cathy

DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working

Tasigna after 5 pills pancreatis numbers jumped up quickly

Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly

currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then

After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now

numbers lower then ever go figure I've never been this low of a number

last 2 tests .0686 and .0181 !!

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#2 Trey

Advanced Member

PS Beta Group
1,705 posts

LocationSan Antonio, Texas

Posted 21 July 2011 - 01:20 PM

Sounds like Sprycel is your friend. Very good news.

I see you double posted this -- that is a bit too much celebrating early in the morning.

http://community.lls.../11210?tstart=0

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#3 Cathy

Advanced Member

Members
64 posts

LocationWilloughby oh

Posted 21 July 2011 - 06:24 PM

Sprycel is my Friend for now!

I posted this and it didn't show then i posted it again and I couldn't figure out how to delete one. So i'm just going with I'm still celebrating ! We take what we can in this adventure!

Cathy

DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working

Tasigna after 5 pills pancreatis numbers jumped up quickly

Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly

currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then

After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now

numbers lower then ever go figure I've never been this low of a number

last 2 tests .0686 and .0181 !!

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#4 hannibellemo

Advanced Member

Members
728 posts

LocationNorth Central Iowa

Posted 21 July 2011 - 07:25 PM

Congratulations, Cathy! Just remember who, between the turtle and the hare, wins the race! (Nothing against you rabbit-types ).

Pat

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>