Despite my painful mouth sores, in every other physical way, I have been feeling very good since starting Sprycel (9 months ago). I even ran with my son half a block two days in a row. I have had severe anemia and I am not really supposed to do this (doctor's orders), but I felt if I didn't get some real exercise, I would explode. I felt fine afterward, but it wasn't much of a workout. This has been so hard on me because I have never been a sedentary person. Anyway, although it has been 18 months and my blood counts remain low and no real great leaps in my PCR (except it gets lower little by little---I am a turtle), I still feel good. I was just wondering if this is a good sign or an absolute nothing. I never felt sick when I was dx with WBC at 180,000. Any thoughts?
Also, is there anyone out there who has been living with low RBC (around 6-7), WBC (in the 1s), ANC (around 1.0), and PLT (below 50K) for years? I am a little panicked to think I am living on borrowed time. I have been acting crazy and buying cute clothes and shoes for my kids and me to look nice with the idea in the back of my mind that I will have only so much time to enjoy them. I have also been clearing out the old, so I have minimal stuff. It seems to somewhat keep my mind off of this.