Posted 02 April 2011 - 08:43 AM
Hi First best of luck on your delivery. My second grand child is due may 26. You are to young to have CML! I was dx may 2010 gleevec stopped working for me in Feb so after fighting with my insurance just got my first month of Tasigna (from mfg not ins still appealing) and have taken it for 3 days only. I'm taking it at 10 and ten has worked out okay for 3 days except i overslept this morning and now have to wait till 11 to eat. So it will take some getting used to. My onc and great nurse said don't get up in the middle of the night that's crazy. She said just start with 10 or something experiment and keep a log and figure out what works best for you. I was scared to start over with new side effects since i have just lately been feeling better and getting gleevec side effect tolerable. Just a new adventure and I'm still alive .lol As far as side effects none really yet I'm alwaysa little fatigued so that hasn't changed and I'm a little dizzy so nothing much yet. Yeah.
You will be fine and having a new baby, you will be so happy hopefully you will just breeze thought this. Family and friends are what get me through life !
Best of luck to you,
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!