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A One Year Update: My CML is a Blessing.


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#1 jgnagey

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Posted 21 December 2010 - 10:18 AM

To those of you who are recently diagnosed with CML. To those who cried when they saw the sticker shock for the drug that is keeping you alive. I understand, I've been there. Last Fall I had been diagnosed with CML, had broken my back, had lost the majority of income, and temporarily lost my family. I had dropped into a deep depression, so deep in fact, that I couldn't eat and weighed less than 140lbs.

I had no options, and so I turned wholy to God for help and my church for support and now things are so much better. My back has healed enough for me to workout, I weigh 190lbs, my income has doubled, I have a good oncologist at the V.A., my wife and I have reconciled, and most importantly my relationship with God through Jesus has strengthened considerably.

Things aren't perfect, the side affects are tough especially the constant fatigue and cramps. As I mentioned earlier I can lift weights again but the cancer wont let me participate in my true love (cage fighting). I miss it but it's a small sacrifice compared to what I had lost last year.

I guess what I would like to say to those newly diagnosed is rely on God and believe me it will get better.

You never know, your CML could be a blessing.

Jeremiah



#2 TomL

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Posted 21 December 2010 - 12:23 PM

Bless you for these thoughts, Jeremiah. Merry Christmas.



#3 Susan61

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Posted 21 December 2010 - 05:12 PM

AMEN!! God Bless You and I hope your message helps someone who is going through a similar situation.  Merry Christmas and a Blessed New Year to you and your family.

Susan



#4 reedgirl

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Posted 22 December 2010 - 07:59 AM

Jeremiah,   How wonderful.....you said it all so well.  There are blessings that can be found in life every day and in every situation.  So glad to read of your progress in the last year but most important so glad to know of your faith in God and your relationship with Jesus.  Merry Christmas to you and your family, praying the next year is even better for you.



#5 VickiW

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Posted 22 December 2010 - 12:33 PM

thank you Jeremiah!

how did you know I was sitting here feeling sorry for myself?  I had forgotten how truly blessed I am.  Well, not completely, just had my feelings hurt again, unintentionally, by my otherwise wonderful hubby.  I know he loves me and does a fantastic job of taking good care of me, I just wished he cared ABOUT me or, more specifically, what is going on with me in regards to the CML.  No matter what I tell him about the CML (in prcu, lost pcru, etc.) he just stares at me like I just told him to take the dog out.  I am a strong individual with a usually positive attitude and not a whiner and always tried very hard not to burden him by complaining about every new ache or pain, only talking about something that REALLY hurts or might be serious.  Being a person of strong faith and (usually-hehe) strong mind, I am rarely frightened, but when something happens like the Gleevec stops working and we don't know yet why, or I finally gain PCRU on Sprycel only to lose it a few months later, I guess I just need someone to care and tell me it's all right, not take the dog out.  I don't know what I would do without this board and my virtual friends.  I live way too far out in the middle of nowhere to join a support group (if I could even find one for us) so it's just so nice to be able to talk about all things CML with all of you.  You all have no idea how many times just "lurking" has been my lifeline to sanity!

Thank God for you all!!!!

Merry Christmas!

Vicki  


Dxd 2007

started on Gleevec switched to Sprycel 100mg in 2009

PCRU since 2011

20mg Sprycel every other day since Dec. 2014

Began TFR 4-18-16


#6 jgnagey

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Posted 22 December 2010 - 12:42 PM

Vicki,

     I am very happy my post encouraged you so much. It meant a lot to hear that.

Jeremiah






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