1 reply to this topic

[sandimartini47]

I had an appointment with my onc. today and she said that I am developoing neuropathy from the gleevec.  She said this can happen.  My legs feel numb and are painful at the same time.  I feel as though I can only stand a few minutes and my legs will give out.  Anyone else with cml developing neuropathy?  what treatment are you on? how does it feel?  thank you for any info, sandi

[Tedsey]

I was diagnosed with severe cervical stenosis and, they say, arthritis.  After about a month on G, I had numbness in my hands and arms.  My right foot went numb while walking the baby to sleep at night.  I was referred to a special oncologist who was a neurologist.  He specializes in the toxic effects of chemotherapy on the nervous system.

The neuropathy was not a result of the Gleevec.  However, it seemed to exacerbate a condition I didn't know I had.

The doctor recommended I see a neuro surgeon for a consult and Elavil (was having headaches at the time).  His nurse practioner suggested physical therapy also.

Oh, they did an MRI which revealed this second serious condition (aside from CML).  I would see a neuro-oncologist.

Best of luck to you.  I hope the pain subsides!