I have been working with Dr Saltzman of LLS to improve the Community site, emailing and talking with him regularly. Dr Saltzman is an L&LS patient first and foremost, with two separate blood cancers. So he wants to help. And he is trying to make Community better for us, and has, in my opinion, made good progress in the past couple days. And there are more improvements coming. So I want to suggest that Dr Saltzman is on our side. He is the one who stepped up to deal with the Community issues when everyone else at LLS just told us "too bad, so sad." So I am impressed with Dr Saltzman and his efforts to help.
Here is what he has done already to resolve issues brought up by us:
Made posting new threads more intuitive. Added a "Start a New Conversation" button (instead of the "What's on Your Mind?") This is already functioning now.
Posts can be edited or deleted by initiator within 48 hours of posting. Functional now.
Internal messaging works without "Friending." Functional now. So the "Friend" function has no value. Please DO NOT SEND FRIEND REQUESTS since it has no purpose and it may be deleted soon.
Coming Soon but Maybe not by February 1:
Old posts from the past couple years should be added soon. The old platform Website Developer company is not being very cooperative on this. So the timing is unknown for now.
Articles will be put into a separate folder instead of in with the posts. There have not been any recently, maybe just due to article cycle timing. So Community already looks less cluttered.
Working on the following issues, but no promises about whether these can be added:
Add titles to posts
Bolding / unbolding posts which have been read (need titles to make this work)
This old site will presumably be shut down on February 1st, and will probably not be visible any longer as far as we know. The current Web Development vendor has not said what will be done. It may just show a broken URL. I would suggest if anyone wants to keep old posts, save them to your own computer instead of migrating them to the new Community site for now. Then maybe add them back in later if they are significant.
Old posts from here (past couple years) will not be visible again until they are migrated over (may take week or weeks). So if there are recent posts anyone cares a lot about and want to continue the thread, you might want to save them on your own computer, and possibly re-post them over at Community. LLS is not certain about the old posts because the Website Developer has not provided information.
If you want to continue posting through LLS, here is some information:
Register at LLS Community:
CML portion of LLS Community:
Edited by Trey, 30 January 2018 - 07:23 PM.