Has anyone else taking Sprycel experienced dry eyes and/or changes in vision?
Sprycel and Eyes
Posted 03 August 2017 - 11:13 AM
Adverse Effect - At about week 6 of Sprycel sharp muscle pain that would start at 2 AM and last for about 4 hours. This lasted about 4 weeks and went away, thank goodness.
Posted 03 August 2017 - 01:07 PM
I've had a "stroke" in my left eye and am now blind in it... Who knows?
Posted 03 August 2017 - 06:07 PM
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
Posted 06 August 2017 - 01:00 PM
I experienced a serious condition with my left eye. On 11/23/15 I woke up in the middle of the night with stabbing pains in my eye and went to the ER. The doctor recommended that we see an eye specialist asap.
The next morning we saw an Ophthalmologist and a specialist in diseases of the retina and vitreous.who said there wasn't adequate blood flow to my eye. I have had some cardiac emergencies and surgeries so he checked with my vascular surgeon. Since there was no change in my vascular condition, the opthamologist did some additional research and found a link to my CML.
Diagnosis: diffuse retinal hemorrhages, iritis, and neovascularization all consistent with ocular ischemic syndrome. I feel that this is a combination of his vascular disease and CML as this entity can lead to sludging and venous stasis exacerbating the ischemic disease to the point of creating the signs and symptoms he now manifests. He has now required multiple anti vascular endothelial growth factor intraocular injections and panretinal photocoagultion sessions and will likely need more treatments in the future. ( Plain language my eye was creating new veins due to lack of blood flow which untreated would have led to losing sight in the eye.)
I have some vision loss, tunnel vision and when a bright light hits my eye I lose vision completely in this eye for a time which impedes my night driving. My condition seems to have stablized for now.
Thanks to all who share their CML stories and information. Knowledge is definitely empowering.
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