Spleen pain after 7 months on reduced dose
Posted 27 July 2017 - 03:55 PM
Posted 27 July 2017 - 09:07 PM
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
Posted 04 August 2017 - 12:34 AM
Posted 07 August 2017 - 07:53 AM
jmoorhou, if you have been undetectable since 3 months after dx, then I will share with you what my doctor said, "CML is not causing any of your concerns". For all practical purposes if our response is excellent we are not being affected by CML, we may have side effects from our TKI, though.
How are your platelet counts, blood counts in general? What was your platelet count at diagnosis? Mine was 1.25 million, my spleen was huge! I did have some discomfort after, some real - some imagined, I'm sure.
Does your onc check for spleen size at your exams, if not, ask him to next time. More than likely he will tell you he can't feel it. No worries!
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 07 August 2017 - 04:23 PM
Posted 07 August 2017 - 08:16 PM
The spleen is not a good indicator of minimal residual disease status. It is a "lagging indicator".
Posted 07 August 2017 - 08:55 PM
Its never to late to live happily ever after/ Do not squander time; for that's the stuff life is made of
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users