Javascript Disabled Detected

You currently have javascript disabled. Several functions may not work. Please re-enable javascript to access full functionality.

Question for Trey

Started by jmoorhou , Jun 27 2017 05:51 PM

Please log in to reply

4 replies to this topic

#1 jmoorhou

Advanced Member

Members
314 posts

LocationOutside of San Francisco

Posted 27 June 2017 - 05:51 PM

Hi Trey, I have been on 200 mg Gleevec for the past four months, I just got the cbc back and my white blood cell count is up one point from 7 to 8 just wondering if this happened to you.

I haven't gotten the genetics report back.

Thanks

Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

Back to top

#2 Trey

Advanced Member

PS Beta Group
1,705 posts

LocationSan Antonio, Texas

Posted 27 June 2017 - 07:24 PM

My WBC and RBC were below normal when taking 400mg Gleevec, and when I went to 200mg daily they both went up a small amount. Since you began the dosage decrease in a normal WBC range it is understandable that your WBC would rise after a few weeks.

Back to top

#3 SandyG353

Advanced Member

Members
84 posts

LocationNew Jersey

Posted 28 July 2017 - 04:03 PM

Hi Trey.

What made you decide to go Sprycel after losing remission?

Sandy

Back to top

#4 Trey

Advanced Member

PS Beta Group
1,705 posts

LocationSan Antonio, Texas

Posted 29 July 2017 - 12:19 PM

Just to clarify, I did not "lose response" to 200mg Gleevec, I tried cessation and did not maintain PCRU. Then I decided to switch drugs while I was in transition for the reasons cited above and I would have chosen either Sprycel or Tasigna, but my Onc wanted Sprycel so I just went with that. He is my seventh Onc and is just fine so I did not want to try for eight right now. Might get someone named Henry. VIII.

Edited by Trey, 29 July 2017 - 12:19 PM.

Back to top

#5 SandyG353

Advanced Member

Members
84 posts

LocationNew Jersey

Posted 01 August 2017 - 11:07 AM

Thanks for your response. If my daughter does go off of Gleevec, the other drugs would not be good for her because of other health conditions that she has. n