Posted 23 June 2017 - 08:10 AM
That is excellent news! Congratulations! I'm following your results since I've been on Sprycel for over 6 years I've been on 70 mg and have been wanting to lower it to help with side effects. Then out of the blue I got my first PE and just had a liter drained from my lung and waiting for the right side to diminish to go back on Sprycel. He wants me to change but I want to stay on Sprycel and just go lower dose! Waiting on my PCR I've been off my drugs 3 1/2 weeks when they drew the blood. I'm curious what my numbers will be they have always jumped around. I've been MMR for about 9 months only but just bearly.
I feel absolutely amazing though I've been off Sprycel for a month I feel like I did 7 years ago! Before CML!! So I'm pushing to go back on 50 or maybe 20 and my onc is thinking about it and is agreeable now. So I'm pretty happy!
I will do my history I keep forgetting to do that.
Dx 2010- Gleevec 9 months stopped working
Tasigna pancreases after 4 pills
Sprycel 7 years up and down big time! 100 mg then 50 numbers went up then 70 mg past 1 year or so
Congrads.... I'll have a glass of wine to cheer you tonight!
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!