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JPD update

Started by JPD , Apr 27 2017 03:41 PM

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8 replies to this topic

#1 JPD

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258 posts

Posted 27 April 2017 - 03:41 PM

Havent checked in for a while. Doing well (I suppose) - Onc is happy. Still creeping along.

Turtle Power!

January 15: .53%

April 15: .78%

July 15: 1.1% - upped dosage to 400mg after this test

Oct 15: .85%

December 15: .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%

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#2 thatguy

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LocationWild west

Posted 27 April 2017 - 05:19 PM

Happy peace of mind to you!

3/25/2015- Dx'ed by FISH : 85% of cells dual-fusion signals, 7% with tri-fusion signals, WBC 212,000. Started Gleevec 400mg.... Calculated .93 SOKAL

08/17/2015- 14.793 % I.S P210 (quest)
10/15/2015- 3.313 % I.S (quest)
12/23/2015- 1.891 % I.S (quest)
1/07/2016- Tasigna 300mg 2x daily
1/14/2016- 4.414 % I.S P210- City Of Hope lab, mutation negative.
1/26/2016- 1.589 % I.S (quest)
2/22/2016- 1.719 % I.S (quest)
2/29/2016- 1.133 % I.S (quest)
3/03/2016- Tasigna 400mg 2x daily.
3/29/2016- 0.663 % I.S (quest)
4/27/2016- 0.781 % I.S (quest)
5/04/2016- 0.652 % I.S.(quest)
5/24/2016- 0.501 % I.S (quest)
6/28/2016-0.534 % I.S (quest)
7/15/2016-0.881 % I.S (quest)
7/22/2016- Bosulif 500mg
7/28/2016- t315i test- Negative
8/22/2016-0.432 % I.S (quest )
11/15/2016-0.325 % I.S (quest)
2/1/2017- .0445% i.s (genoptix)
5/6/2017- .0968% i.s (genoptix)
5/12/2017- .12 % i.s (quest).
6/4/2017- .083% i.s (quest)
6/11/2017- .0295% i.s (genoptix)
8/5/2017- .0501% i.s (genoptix)
11/6/2017- .0270% i.s (genoptix)

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#3 chriskuo

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367 posts

Posted 27 April 2017 - 05:47 PM

Below MMR and trending down is great.

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#4 tiredblood

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Posted 27 April 2017 - 08:35 PM

Happy to hear from you.

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#5 acl

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142 posts

Posted 27 April 2017 - 10:01 PM

JPD, Very happy to hear from you. We missed you!

Havent checked in for a while. Doing well (I suppose) - Onc is happy. Still creeping along.

Turtle Power!

Diagnosed March 2014

Imatinib 400 mg. Summer 2014, Imatinib 300 mg.

% BCR-ABL

IS-NCN

06/01/16 0.18%

24/02/16 0.11%

23/03/16 0.13%

12/05/16 0.07%

13/07/16 0.17%

12/09/16 0.12%

21/19/16 0.15%

23/11/16 0.09%

20/12/16 0.11%

19/01/17 0.07%

21/02/17 0.07%

20/03/17 0.06%

20/04/17 0.06%

20/05/17 0.07%

20/06/17 0.06%

23/08/17 0.08%

22/12/17 0.04%

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#6 jmoorhou

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314 posts

LocationOutside of San Francisco

Posted 27 April 2017 - 11:28 PM

Keep the faith!! Good to hear from you, are you exercising??

Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

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#7 hannibellemo

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728 posts

LocationNorth Central Iowa

Posted 28 April 2017 - 07:44 AM

Repeat after me, "I AM doing well! I AM doing well. In fact, I AM doing freaking GREAT!" Congratulations, JPD, whether you believe it or not.

Pat

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>