Mrs has been wrestling with Gleevec for over 9 years now, and it isn't getting any easier.
Recent attempts at reduction have worked well down to a point, PCR starts back up. So she has been at 300 a day for most of this year, stays PCRu at that.
The side effects are debilitating at the least, after 9 years they are nearly unliveable, and I am aching for her. She is thinking about changing, and the good stuff about off label use of Tasigna was a little bit of a nudge for her. We will take it up with the onc in December, just start talking about it so she can get used to the idea. No sudden moves here, it's been slow and steady since 2006 so you go with that if it is working.
Tell me, anyone, of your Gleevec to Tasigna change.