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Hooray for feel good days!


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#1 tiredblood

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Posted 10 October 2015 - 10:42 PM

I've felt better today than I have in a long time.  I got some things accomplished today too, which also felt good.  

 

I remember one morning several months ago, I awakened feeling good and wanted to just keep lying in bed savoring the moment.  I was thinking that morning that a few mornings prior to that, I had felt so bad upon awakening, that I had to call work and tell them I'd be a few minutes late.  So, the morning I woke up feeling good, I thought, I can't call work and tell them I'll be a few minutes late because I feel GOOD!  I cried that morning because I had not felt good in a long time.

 

Here is hoping we will all have some feel good days.



#2 gerry

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Posted 11 October 2015 - 03:41 AM

Glad you're having a good day, hope there are a more in your future. :)



#3 soundoff

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Posted 11 October 2015 - 01:46 PM

Awesome sauce!

I'm feeling good today as well, I got this today!

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#4 tiredblood

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Posted 11 October 2015 - 04:02 PM

Kudos to you, Soundoff. Great accomplishment!



#5 gerry

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Posted 11 October 2015 - 11:05 PM

Congrats Soundoff. :)



#6 amcantley

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Posted 12 October 2015 - 01:15 PM

Enjoy the feel good day!



#7 Gail's

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Posted 13 October 2015 - 01:39 PM

Isn't it great to wake up feeling well?
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#8 SUE

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Posted 14 October 2015 - 09:35 AM

So happy for you, tired blood.  Those "feel good" days are precious.  Wishing many more for you and for everyone.

 

Congratulations, Soundoff.  Great Accomplishment.

 

Sue


Dx  April 2013, FISH 62,  BMB not enough for PCR test; put on Gleevec 400;

 August 2013, FISH 8.7;

Oct 2013, FISH 5.6

Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;

Feb, 2014 PCR  6.8

May,2014  PCR   .149

Aug, 2014 PCR    .015

Nov. 2014 PCRU

March, 2016  went down to 40mg Sprycel

Oct. 2016   stopped Sprycel for a couple weeks due to concern about shortness of breath.  Echo showed mild PAH.

Nov 1 2016  resumed Sprycel 20 mg daily 

Dec 2016  PCRU

March 2017  PCR 0.020

May 2017     PCRU

Sept  2017   PCRU

Dec    2017  PCRU

 


#9 tiredblood

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Posted 14 October 2015 - 09:49 AM

So happy for you, tired blood.  Those "feel good" days are precious.  Wishing many more for you and for everyone.

 

Congratulations, Soundoff.  Great Accomplishment.

 

Sue

Thank you. I'm certainly going to treasure them when they come.



#10 soundoff

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Posted 20 October 2015 - 01:32 AM

Thanks everyone!




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