5 replies to this topic

[RobbinsNest]

So I was wondering if anyone has had bone pain as a side effect from taking Tasigna? I've been taking it for around 4 months and haven't had any really bad reactions (except for the damn ITCHING!!!). A couple of days ago, The ends of my Femurs began hurting. It got to the point that I could barely walk. Over the past few days the severity of the pain has lessened but still persists. Has anyone had something like this happen? I haven't felt this type of bone pain since before my diagnosis. Needless to say, I'm a bit concerned. 

 

Thanks for any help!!!

 

David

 

P.S - I did call my Onc. Just waiting for him to call back.

[Frogiegirl]

Yep. ...my first few months on tasigna I couldn't walk straight down the stairs. ..I walked sideways because it hurt so bad to bend my legs like I had ran a marathon or something.....I still have aches and pains. But not as intense.

[Trey]

All TKI drugs can cause accelerated mineral turnover in the bones.  This does not mean they get weaker, just that they turn over minerals more quickly.  This process can cause pain, often in legs bones since they must support the weight of the body.  Because the bones are dense it can take a while for the bone pain to develop.  But it will usually lessen over time as the body adapts.

[rcase13]

Yep been there on Tasigna. It slowly went away. It was really bad for me. I could not even walk. My wife had to help me to the bathroom.

Now 9 months later I have little to no bone pain. Sadly the itchy head never went away completely.

[RobbinsNest]

Thanks everyone for your feedback. I definitely feel more at ease.

[Puneet]

My wife has bone pain in her right thigh. She has been taking Sprycel 70 mg. It goes to the point that she has to stop walking or whatever she is doing till the pain goes over.