I am a 27 year old male and I had my first bone marrow transplant in March where I spent 29 days in the hospital. My blood counts have been dropping ever since and it has taken doctors so long to figure out why? I am so frusturated. I have been trying to get my mind right and keep striving forward. The last week has been beuatiful, so I have been taking walks outside everyday. It has really helped me to feel better, my breathing even feels more normal. I felt like I was getting better.
Today, I had one of my weekly check ups, where my doctor told me I need a second bone marrow transplant. My first transplant was successful. I am 88% donor. But the 12% that is still my cells are producing more cancer cells so that is the reason why they want to do the second transplant. Praying that my original donor will donate more bone marrow for me. Has any one had any experience with a second transplant? The doctor said I would just need the bag of bone marrow just like a transfusion, but the nurse said I would have to get admitted and start another (third) round of chemo. I don't want to hit rock bottom again. I don't want to stay in the hospital for a month and deal with all the aweful side effects. If anybody had any advice on their second transplant I would really appriciate it.
They uped my Sprycel to 140mg from 40mg and I'm nervous to get aweful side effects. If the doctor said this chemo medicine and radiation would kill the rest of the cancer cells, why do I have to get a second transplant? I just want to live a normal life. I just want to be in remission. Will this ever get better? Will this port ever come out of my chest?!