After sitting on pins and needles waiting for a number, I received my PCR results after 3 months on 100 mg Sprycel. At diagnosis, my PCR was 82.7% and I dropped to 0.4%. I'm so pleased with this result that I can't even describe it.
Three Month PCR
Started by
RichCML
, Apr 26 2015 06:27 PM
7 replies to this topic
#3
Frogiegirl
-
- Members
-
- 259 posts
Advanced Member
Posted 26 April 2015 - 06:43 PM
Wow! Congrats!
Diagnosed Oct 2013 Started 600mg of Tasigna on Nov 4th. Lowered dose a few months later to 300mg due to side affects stayed here declining PCR until March 2015 small jump from 0.0072 to 0.0083 scarred my doc into full dose of Tasigna again 600mg(been miserable since) but reached PCRU 06/15/2015(next test) and have been there ever since. Hoping to have another little one. I have the support of my doc to go off anytime, just scared to jump. might go two years PCRU but he said it wont make much of a difference. I just figured I could possibly go into a trial while preggers if I got the two years behind me.
Nov 8th 2017 went off Tasigna
Dec 1st PCRU off TKI
Jan 5th PCR Detected .0625
Feb 1st PCR Detected .7815
Added 8-6 grams Curcumin daily in Feb
March 3rd PCR Detected 3.2646 YIKES!
stopped trying for baby after February reading. will start new TKI march 16th 2017 (Sprycel)
FYI I'm not done trying for my last little one.
#4
snowbear
-
- Members
-
- 176 posts
Advanced Member
Posted 26 April 2015 - 06:50 PM
Wow !! That is awesome.
#5
Billie Murawski
-
- Members
-
- 711 posts
Advanced Member
- LocationErie,Pa
Posted 26 April 2015 - 06:56 PM
Great News, and it only gets better seeing those numbers drop. Billie
#6
pammartin
-
- Members
-
- 631 posts
Advanced Member
- LocationPennsylvania
Posted 27 April 2015 - 08:44 AM
Congrats!!!!
#7
acl
-
- Members
-
- 142 posts
Advanced Member
Posted 27 April 2015 - 09:49 AM
RichCML congratulations, I am happy for you!
Diagnosed March 2014
Imatinib 400 mg. Summer 2014, Imatinib 300 mg.
% BCR-ABL
IS-NCN
06/01/16 0.18%
24/02/16 0.11%
23/03/16 0.13%
12/05/16 0.07%
13/07/16 0.17%
12/09/16 0.12%
21/19/16 0.15%
23/11/16 0.09%
20/12/16 0.11%
19/01/17 0.07%
21/02/17 0.07%
20/03/17 0.06%
20/04/17 0.06%
20/05/17 0.07%
20/06/17 0.06%
23/08/17 0.08%
22/12/17 0.04%
#8
Lisa Lisa
-
- Members
-
- 62 posts
Advanced Member
- LocationNew York
Posted 27 April 2015 - 06:44 PM
Wow congrats. Great news! Carry on!
Dx 2/2015 BCR-ABL1 (p210) 85.2% (IS) 3/15
22% 5/15 0.13% 6/15 PCRU attained 9/15
Initial dose Sprycel 100 mg 3/15 Lowered 80 mg 5/15 Lowered 50 mg 1/16
Note: dose lowered bc of side effects - not bc onc wanted to reduce dosage
Sprycel: Currently 50 mg per day - taken 10 pm
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
