I agree and I believe you are responsible. You have been working on a plan for a long time, and you have researched your situation in great detail. For whatever reason your VD level is low, as several have stated theirs are also. Mine is good, and has been long before my diagnosis. My last VD check was the week before Thanksgiving. I think I mentioned Cleveland did not do a full work up. Although I live in Pennsylvania, I somehow maintain my vitamin D level. The supplements I was taking before diagnosis were not needed.
Mayo writes of the connection between several vitamins, including D and cancer. And I am all for taking supplements, but taking them responsibility is important. You noted several times you are taking the higher dose under the care of your oncologist and it is only for a short time to get your levels up. If they reach a safe level you will still take the supplement but in lower doses.
I am huge on disclaimers. Although unplanned I am off TKI, but I also do not recommend anyone stopping. Mine was initially stopped because of the PH under oncologist care. In January I began my personal journey of not returning to TKI, that is when my oncologist released me and sent me to Cleveland because he did not agree with my choice. Now that Cleveland is on board, I am fairly sure he will be comfortable with returning to monitor me. Technically, I was only off unsanctioned TKI for 2 months.
You are very good with explaining this is right for you, and informing others of what might help. But in doing that, just like in me sharing my stopping TKI, there is a responsibility to tell people this is your choice and should not necessarily be theirs, but either way it is under a professional's care and verified with testing.
Going out and buying vitamins, supplements, or other is not responsible with our disease. And I cannot express enough the quality of some of the junk out there that is for sale is poor to horrible.
I hope people make responsible choices and go through their professionals as you are doing. Testing levels is the first step, then adding what is needed will only be a help to the body, cancer or non-cancer.
You wrote not long ago you are not afraid of the CML. I have lost that fear also, I do not know if it is because I have been undetectable for so long or because the PH scares me more. I chose to remove my IV Remodulin treatment for the PH, and begin the oral treatment before Dr. Simon was ready for me to do so. Living with the picc line was something that put me in a dark place I never want to revisit. I would not suggest to anyone else to do this. Although for me it was the best choice and it ended up working out, I could have easily died from removing the picc incorrectly or abruptly stopping the Remodulin. I knew that before I sat down and pulled the line.
I search for your posts and your results because you are willing to try ideas and treatments that are unconventional. And I believe you know what you are doing and it is right for you. All I am trying to get across is what is right for you or I is not right for everyone. And, you are much better at this than I, you are going through your journey with medical approval.