My wife has been on Gleevac since July of last year and we are now down to less then a tenth of a percent and hoping to achieve undectable next go round. The problem is she is experiencing memory loss. While this seems to be a side effect there does not seem to be a lot of information out there. Also most say it tends to get better over time, but she is having the opposite problem. It seems to be getting worse. I think last night was the final straw that has us worried. She not only forgot to set the timer for the cookies and only remembered them when I mentioned I smelled something burning, but she also instead of turning the burner off on the stove turned it to low and when I woke up this morning the whole kitchen smelled of gas. We are both now worried about what is next and have we entered the arena of unsafe.
Of course the easy answer is reducing the level of medication, but I for one am very hesitant to do so since we are getting such great results. I might mention also that she is only 37 and we are in this fight for the long haul.