I know that we all complain about the copay and out of pocket costs of our TKI's. The price tags are nothing less than ridiculous. But, my question here is this.... What do you actually pay per month out of pocket for your Tasigna? And.... is there anyone that is having finacial problems getting their Tasigna?
out of pocket costs for Tasigna
Posted 25 March 2015 - 01:40 PM
Diagnosed in September 2011. Tried one year of Sprycel. Had great response. Became undetectable in a few months. Changed to Tasigna hoping for less side effects. Self medicated myself down to 20% dose and held for 3 years before becoming detectable again. It has been a journey that has helped me realize what life is about! I am all about a balanced life. I firmly agree with my decision to lower my dose. What is life if you aren't living? Mine will never be the way it was, but it is going to be as good as I can make it! Drs PRACTICE medicine, we can guide our dr to help us with a better life! Don't settle until it's acceptable to you!
Posted 25 March 2015 - 02:35 PM
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
Posted 26 March 2015 - 12:56 AM
If you have commercial insurance, the drug companies generally have copay assistance programs available for patients (they have a big incentive to get you started on and continuing to take their drugs, given what they charge the insurance companies). With the wide variety of copays on prescription insurance, there is no 1 size that fits all. LLS and other non-profit organizations have programs to provide assistance based on income levels.
For people on Medicare or other government-supported health plans, the drug companies are not in a position to provide direct support to patients. They are mandated by law to provide discounts in the Medicare Part D donut hole (which will be shrunk to 0) by 2020. Medicare Part D also has a maximum 5% copay in the catastrophic phase, which can still be $300/month more or less for TKIs.
So the answer is that people find different solutions based on their insurance coverage and income level.
University medical centers often have nurses or others on staff who are good at identifying options for getting support.
Posted 31 March 2015 - 01:54 PM
I live in Kansas and it has a parity law. I pay no co-pay for my Tasigna. Parity laws make it to where the patient pays the same for oral chemo as they would for intravenous chemo. States with parity laws are WA, MN, OR, IA, CO, IL, NM,LA, TX, KS, IN, NE, NY & VA
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