
Trouble sleeping
#1
Posted 11 March 2015 - 03:53 PM
#2
Posted 11 March 2015 - 04:23 PM
It could be the drugs (I've yet to find anything that isn't a possible Gleevec side effect), but the prime suspect has to be the stress. If so, it WILL get better, you WILL get through this and you WILL get to the stage where this disease is an annoyance rather than an obsession.
I ended up getting sleeping pills prescribed early on as I just couldn't switch off and sleep. I still get one prescription a year for them and take half a tablet now and again, but believe me things will get better.
#3
Posted 11 March 2015 - 05:57 PM
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)
#4
Posted 11 March 2015 - 07:48 PM
If I recall correctly it started when I started the Gleevec. I may have to get something because I need my rest so I can work. I have anxiety meds but they don't really make me sleepy or the Gleevec is dominating. I went back to the gym this week and don't have to wear a mask any more so my life already starting to feel more like before CML.
#5
Posted 11 March 2015 - 08:03 PM
I have had this trouble ever since I started taking tasigna, and I have heard others in past posts that they also suffer from insomnia while on their leukemia meds, and some say they take sleep aids like benadryl,generic benadryl, tylenol pm etc, but lately I have been hearing on the news that those sleep aids have been proven to cause early dementia, and I was taking the generic benadryl to help me sleep, and I sleep better with those aids, but I have since changed to an herbal sleep aid, because I know this my brother had gotten dependant on those generic beadryl that they have at the dollar stores, and he told me that he had to have those to sleep, well he was diagnosed with colon cancer stage four, but he had gotten very bad dementia, and could not even make up his bed or work a remote control to his tv, and he went down so quick, so I do believe in those sleep aids causes early dementia, just my opinion and he was only 61 years old.
#6
Posted 11 March 2015 - 08:13 PM
Now, after a year on Gleevec, I suddenly had two nights in a row with the sweats / dreams. I'm due for another visit with my oncologist soon -- I'll have to bring it up.
Diagnosed in February 2014. Started Imatinib 400 in April.
2014: 3.18 0.91
2015: 0.22 0.16 0.04 0.55
2016: 0.71 0.66
(Started Imatinib 600 in April 2016)
2016: 0.42 0.13 0.45
2017: 0.17 0.06 0.10 0.06 0.34
#7
Posted 11 March 2015 - 08:19 PM
I take my Gleevec at @6pm and sleep like a baby, almost too much 8-10 hours a night, if that helps.
#8
Posted 11 March 2015 - 10:23 PM
Hi MDJ,
I haven't been able to sleep for a couple years, I'll be so tired when I go to bed then I get brain clutter that I can't shut off if I do doze off I have the weirdest dreams. If I could get a good nights sleep I probably wouldn't be so tired during the day. I have rls and it drives me nuts, magnesium works great for muscle cramps but it doesn't keep the rls away. I figure if I could start sleepwalking I'd get some good rest and exercise too.
#9
Posted 12 March 2015 - 12:43 AM
Maybe try some meditation. I keep thinking it is something I should learn to do.
#10
Posted 12 March 2015 - 06:14 AM
Let me know how that works for you, Billie! I often thought that my racing heart during an anxiety attack should count as aerobics!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#11
Posted 13 March 2015 - 12:15 AM
Let me know how that works for you, Billie! I often thought that my racing heart during an anxiety attack should count as aerobics!
I always think the same too,it has to burn calories. We can write a book called anxiety aerobics!
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