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finally CCyR

Started by Lucas , Jan 28 2015 09:56 AM

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13 replies to this topic

#1 Lucas

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Posted 28 January 2015 - 09:56 AM

Hey, everybody!! I just got my BMA results and it shows no PH chromosome in my marrow!! 3 months on tasigna after i failed glivec and i've got this great result!! I still have the trisomy 8 in 3 cells but it's all great!! Thank you all! Thanks, trey!!

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#2 hannibellemo

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LocationNorth Central Iowa

Posted 28 January 2015 - 10:01 AM

Congratulations, Lucas, great news!

Pat

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

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#3 chrissy778

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LocationTroy, New York

Posted 28 January 2015 - 10:19 AM

Beautiful I am so happy for you, what a relief that must be. <3

Its never to late to live happily ever after/ Do not squander time; for that's the stuff life is made of

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#4 pammartin

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LocationPennsylvania

Posted 28 January 2015 - 12:02 PM

Great news! Celebrate and enjoy

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#5 Jamie2015

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LocationHouston, TX

Posted 28 January 2015 - 12:04 PM

That is amazing news! It definitely brings hope to the rest of us! After just being diagnosed a week ago it feels good to read news like this. Thank you for sharing!

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#6 rcase13

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LocationCharlotte, NC

Posted 28 January 2015 - 02:13 PM

Yes good news is always good to hear. It gives us newbies hope!

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg

04/08/2015 0.01% Tasigna 600mg

07/01/2015 0.01% Tasigna 600mg

10/05/2015 0.02% Tasigna 600mg

01/04/2016 0.01% Tasigna 600mg

04/04/2016 PCRU Tasigna 600mg

07/18/2016 PCRU Tasigna 600mg

10/12/2016 PCRU Tasigna 600mg

01/09/2017 PCRU Tasigna 600mg

04/12/2017 PCRU Tasigna 600mg

10/16/2017 PCRU Tasigna 600mg

01/15/2018 PCRU Tasigna 600mg

Cancer Sucks!

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#7 acl

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Posted 28 January 2015 - 02:17 PM

Great news. Congratulations!

Diagnosed March 2014

Imatinib 400 mg. Summer 2014, Imatinib 300 mg.

% BCR-ABL

IS-NCN

06/01/16 0.18%

24/02/16 0.11%

23/03/16 0.13%

12/05/16 0.07%

13/07/16 0.17%

12/09/16 0.12%

21/19/16 0.15%

23/11/16 0.09%

20/12/16 0.11%

19/01/17 0.07%

21/02/17 0.07%

20/03/17 0.06%

20/04/17 0.06%

20/05/17 0.07%

20/06/17 0.06%

23/08/17 0.08%

22/12/17 0.04%

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#8 gerry

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Posted 28 January 2015 - 07:30 PM

Good news Lucus - though I'd say Gleevec failed you, not the other way round.

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#9 Marnie

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Posted 28 January 2015 - 07:39 PM

Congratulations! Making a toast to you right now!

Marnie

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#10 CallMeLucky

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LocationCT

Posted 29 January 2015 - 05:05 AM

Awesome!

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#11 Lucas

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Posted 29 January 2015 - 07:04 AM

thank you all, guys! it means a lot to me!! that's such a good response after i got stucked with 40% PH positive in the marrow at 7 months of therapy! hope i can see my first zero on the pcr!

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#12 mlk210

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LocationIllinois

Posted 29 January 2015 - 08:20 PM

YAY! Great news! Congratulations!

7/2014 Diagnosed,8/14 Started 100mg Sprycel, 9/14 Thyroidectomy (thyroid cancer)

8/2015 Undetectable, 12/15 Plural Effusion (3 wk drug break)

1/2016 Started 70mg Sprycel, 3/16 Plural Effusion (4 wk drug break)

3/16 .014 after a wk w/o meds

4/16 Started 400mg Gleevec

4/16 Undetectable, 7/16 Undetectable, 10/16 Undetectable, 2/17 Undetectable, 5/17 Undetectable, 8/17 Undetectable

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#13 Billie Murawski

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LocationErie,Pa

Posted 29 January 2015 - 08:42 PM

Hi Lucas,

Congratulations it's always great to hear good news. As for all us (old timers) who are doing so well keeping our pcr it's nice to keep hearing positive news from everybody else. I was dx 2007, I get bw every month and I still get a little antsy until I get the phone call telling me everything is okay.

Thank you Billie