10 replies to this topic

[Mr.Tee]

Removed

[gerry]

I tend to get more bruises when I'm taking Curcumin. My accupuncturist has prescribed it to me at the moment to try and help with some hip pain.

[Billie Murawski]

Hi gerry,

How do you feel after acupuncture, I'm thinking of trying it. These last 2 years not knowing what was wrong with Ron,and his collapse dec 1 and waiting for 30 days not knowing whether he was going to make it, and now I have to take care of everything he can't drive or exert himself in anyway yet,we see a cardiologist Tuesday hopefully I'll get more info from him.

I'm really starting to have a hard time just coping with anything. The brain fog is always there but this is worse I feel like I'm going into overload I have to get a grip on things, I heard that acupuncture can help you help yourself to calm down. Do you think it's worth a try?

Billie.

[Antilogical]

I tried acupuncture many years ago for various ailments, and it made no difference.  Except when the acupuncturist guy forgot to remove a few needles.  Yipe!

[gerry]

Hi Billie,

Not sure about the calming down side of it, I use it for muscle pain issues. You might try to get a massage once a week, can help relax you.

[klf2013]

Billie,

Listen to Gerry....Get a massage! I get one monthly and it helps tremendously. Also, try to get to a yoga/meditation class. Works wonders! If none of that works....try it all after a few glasses of wine!

[DebDoodah22]

Mr. Tee - I have not taken curcumen but have wanted to and would be interested to hear from people on that topic. My dx came 11/2013, so it's been a little over a year, I found I could not take 100 mg sprycel due to pe but have done fairly well on 70 mg.Sprycel gave me quite a bit of eye and facial swelling when I took it in the evening before bed, I also woke up with bad headache...so I tried moving meds to morning. The headaches diminished and some of the facial swelling is down. This is not science but I feel that time of day for meds is making a difference in the severity of the side effects. I want to also learn more about curcumen if anyone else has experience with that and can weigh in.
Thanks, Deb

[Trey]

The article is very old and does not mention TKI drugs since they were just being introduced at that time.  So it is outdated.

 

Personally I am not a fan, but I am not anti-curcumin as such.  Scuba is a big fan.  Whether it helps with CML is debatable.  It has some side effects such as acting as a blood thinner, so platelets do not function as well, and Gerry mentioned bruising.  Others have mentioned similar issues.  It also must be taken in large quantity and in a specific form to get taken into the bloodstream. 

 

 

You might want to read some older posts on the issue:

http://community.lls...uba#entry134901

http://community.lls...curcumin scuba

http://community.lls...uba#entry139241

http://community.lls...uba#entry150771

[CallMeLucky]

I'm assuming the "pepper" is bioperine. Bioperine is a dasatinib inducer; that may be why you are getting the rash. Rash is a side effect of Sprycel. Taking an inducer can have the same effect as taking a higher dose. I have questioned how much benefit I get from curcumin vs. the bioperine. Currently I am not taking it as the curcumin was starting to cause some GI issues for me.

[scuba]

I'm assuming the "pepper" is bioperine. Bioperine is a dasatinib inducer; that may be why you are getting the rash. Rash is a side effect of Sprycel. Taking an inducer can have the same effect as taking a higher dose. I have questioned how much benefit I get from curcumin vs. the bioperine. Currently I am not taking it as the curcumin was starting to cause some GI issues for me.

 

There is a new Curcumin on the market called MetaCurcumin. They claim it is 277 times more bioavailable than plain Curcumin.

http://onlinelibrary...300724/suppinfo

 

It is marketed by RevGenetics. I haven't tried it, but am thinking about it since I seek higher bioavailability of Curcumin so I don't have to take my 8 grams of C3 (with bioperine) every day. The one advantage of MetaCurcumin may be that it has zero bioperine.

 

I'd like to see more research on MetaCurcumin.

[Louise1403989338]

Scuba,

 

This Metacurcumin that you referenced by RevGenetics, did you order it yet??

 

This is the one I recently purchased, I find it "easier" obviously but would like to see what you think.