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Red spots on the skin

Started by Jerry.s , Jan 05 2015 05:33 PM

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8 replies to this topic

#1 Jerry.s

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Posted 05 January 2015 - 05:33 PM

Has anyone else noticed tiny red dots on the skin while on Gleevec or other TKI's .

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#2 pammartin

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Posted 05 January 2015 - 07:19 PM

I often had a red rash on my cheeks and chin but your brief description reminds me of petechia. How are your labs? I had low platelets a few months after starting Sprycel. My oncologist held the med till I regained some ground.
Pam

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#3 Jerry.s

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Posted 05 January 2015 - 08:10 PM

I just did some blood work on the 31st and every thing was normal except for my proteins were at 8.4 which is not a big deal .

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#4 CallMeLucky

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Posted 05 January 2015 - 10:21 PM

Gleevec caused me to get many cherry hemangiomas. My doctor said it wasn't the Gleevec but she was a side effect denier
They started when I started Gleevec and they stopped when I stopped taking Gleevec. The good news is they are completely harmless.

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#5 Red Cross Kirk

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Posted 05 January 2015 - 11:23 PM

I've been on Gleevec (400 mg) for a little over two years now. In the last four months I've noticed several tiny red spots on my hands (mostly the palms). They turn brown and then black, and after a few weeks they finally work to the surface and are gone. I showed them to my doc at my last appointment. He said he didn't think it's a side effect, but I'm pretty sure it is. I've also gotten a few eye bleeds too.

Kirk

9/25/2012 p210 transcript 118.7% IS @ D_x, begin Gleevec 400mg/day

12/2012 3.59% & bone marrow biopsy - no residual myeloproliferative features but detected 1/20 metaphases containing the Philadelphia chromosome

2013 0.914%, 0.434%, 0.412%

10/2013 0.360% & bone marrow biopsy - normal male karyotype with no evidence of a clonal cytogenetic abnormaltiy

2014 0.174%, 0.088%, 0.064%

2015 0.049%, decrease to Gleevec 200mg/day, 0.035%, 0.061%, 0.028%

2016 0.041%, 0.039%, 0.025%

2017 0.029%, 0.039%, switched to generic imatinib 200mg/day, 0.070%, 0.088%

2018 0.233%

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#6 jmoorhou

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Posted 06 January 2015 - 12:27 AM

Putting two tea bags under very hot tap water, then putting in freezer for about ten minutes. Then put a tea bag one over each eye and squeezing so some tea gets in the eyes constricts blood vessels....just like it does when you drink it your blood pressure goes up because blood vessels are constricted.....(I think)...it does work

Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

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#7 tazdad08

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Posted 06 January 2015 - 12:12 PM

Yes, mostly on my scalp at the edge of my hair line. I read about it somewhere and I think I remember it saying that those red spots are a sign of leukemia.....

Diagnosed in September 2011. Tried one year of Sprycel. Had great response. Became undetectable in a few months. Changed to Tasigna hoping for less side effects. Self medicated myself down to 20% dose and held for 3 years before becoming detectable again. It has been a journey that has helped me realize what life is about! I am all about a balanced life. I firmly agree with my decision to lower my dose. What is life if you aren't living? Mine will never be the way it was, but it is going to be as good as I can make it! Drs PRACTICE medicine, we can guide our dr to help us with a better life! Don't settle until it's acceptable to you!

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#8 Jerry.s

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Posted 06 January 2015 - 02:37 PM

I went to the dermatologist and she said the red marks are no big deal. They will come and go but the did burn off a mole

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#9 August1

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Posted 06 January 2015 - 02:48 PM

Yes, I've had this quite a bit, especially since switching to Sprycel. I've been to the dermatologist and had biopsies done and all was fine. My oncologist doesn't seemed too concerned either.