Dry skin is about to get the best of me. So much so, it has, at times, kept me awake at night. Sometimes it hurts. In fact, it hurts right now. I talked to the hematologist who is going to put in a dermatology consult. My head itched like crazy on the drive home from work today and tonight, my hair is falling out like crazy. Heavy sigh! On the bright side, I do feel better overall from the "excellent" results from the TKI. It took about a year to noticeably feel better. Well, I'm off to load up on water for hydration and to moisturize. Thanks for letting me vent.
Drrryyy skin- just venting
#1
Posted 02 January 2015 - 11:39 PM
#2
Posted 03 January 2015 - 07:13 AM
My hair fell out in patches, the left side was worse than the right. I finally put an inch guard on the clippers and shaved my head. I didn't pull off the look well but it evened out the bald patches and I could smear lotion on my head easier. I gave new meaning to the greasy look for quite a while.
Looking at the positives always helps. Best of luck with the dermatologist, hoping you find some relief.
Vent away! It is good for the soul.
#3
Posted 04 January 2015 - 01:40 AM
Among the things I already had on hand, I bought some Lac-hydrin 5 and AmLactin which I think are basically the same thing. Not cheap either. You mentioned looking on the bright side... no acne blemishes. : )
#4
Posted 04 January 2015 - 12:03 PM
I recommend CeraVe also. It was the only cream that helped my hands and feet which were dry, peeling, and developing small cuts. I still use CeraVe twice a day. My hands are still dry, but the peeling and cuts are much improved.
Sue
Dx April 2013, FISH 62, BMB not enough for PCR test; put on Gleevec 400;
August 2013, FISH 8.7;
Oct 2013, FISH 5.6
Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;
Feb, 2014 PCR 6.8
May,2014 PCR .149
Aug, 2014 PCR .015
Nov. 2014 PCRU
March, 2016 went down to 40mg Sprycel
Oct. 2016 stopped Sprycel for a couple weeks due to concern about shortness of breath. Echo showed mild PAH.
Nov 1 2016 resumed Sprycel 20 mg daily
Dec 2016 PCRU
March 2017 PCR 0.020
May 2017 PCRU
Sept 2017 PCRU
Dec 2017 PCRU
#5
Posted 04 January 2015 - 12:19 PM
I recommend Olive Oil. I use it on my face and hands in the morning and at night when my skin is very dry, and I don't have to leave the house.
Adela
Diagnosed March 2014
Imatinib 400 mg. Summer 2014, Imatinib 300 mg.
% BCR-ABL
IS-NCN
06/01/16 0.18%
24/02/16 0.11%
23/03/16 0.13%
12/05/16 0.07%
13/07/16 0.17%
12/09/16 0.12%
21/19/16 0.15%
23/11/16 0.09%
20/12/16 0.11%
19/01/17 0.07%
21/02/17 0.07%
20/03/17 0.06%
20/04/17 0.06%
20/05/17 0.07%
20/06/17 0.06%
23/08/17 0.08%
22/12/17 0.04%
#6
Posted 04 January 2015 - 03:51 PM
I use coconut oil on my face for the dry skin I get from Tasigna. I already had it in my pantry, so I decided to give it shot on my face and I like how it works.
#7
Posted 04 January 2015 - 06:47 PM
I use Keri Lotion on arms & legs. It's effective, but a bit greasy, so I use O'keeffe's Working Hands ... on my hands. Really takes care of the cracked fingertips. I don't hurt as much anymore.
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#8
Posted 04 January 2015 - 07:22 PM
#9
Posted 05 January 2015 - 08:51 PM
Cracked fingertips..the thought of that makes me shudder. How can something so small be so incredibly painful! My thumbs crack every winter. If you can stand the five minutes of horrid pain when first applying, New Skin works wonders.
NOOOOOO MORRRRRE PAAAAAAIIIIIIINNNNNN! But thanks, anyway.
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#10
Posted 05 January 2015 - 08:53 PM
#11
Posted 06 January 2015 - 12:35 AM
I had the same terrible itchy head and Tea Tree shampoo really helped.
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