Happy New Year all my dear friends,
May 2015 be a better,blessed year for all of us. Maybe the year of the cure 
!!!
Billie
Happy New Year
Started by
Billie Murawski
, Jan 01 2015 01:00 AM
15 replies to this topic
#1
Billie Murawski
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Posted 01 January 2015 - 01:00 AM
#2
Jerry.s
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Posted 01 January 2015 - 01:12 PM
Billie , that would be fantastic !!
#3
rcase13
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Posted 01 January 2015 - 05:13 PM
It really would be. I look at my old project house in the woods and all I can think about is the need to finish fixing it up.
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#4
pammartin
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Posted 01 January 2015 - 05:22 PM
Happy New Year Billie
#5
SUE
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Posted 01 January 2015 - 06:24 PM
Happy New Year Billie and all.
Billie, may your New Year's wish come true.
Sue
Dx April 2013, FISH 62, BMB not enough for PCR test; put on Gleevec 400;
August 2013, FISH 8.7;
Oct 2013, FISH 5.6
Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;
Feb, 2014 PCR 6.8
May,2014 PCR .149
Aug, 2014 PCR .015
Nov. 2014 PCRU
March, 2016 went down to 40mg Sprycel
Oct. 2016 stopped Sprycel for a couple weeks due to concern about shortness of breath. Echo showed mild PAH.
Nov 1 2016 resumed Sprycel 20 mg daily
Dec 2016 PCRU
March 2017 PCR 0.020
May 2017 PCRU
Sept 2017 PCRU
Dec 2017 PCRU
#6
Jerry.s
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Posted 01 January 2015 - 08:15 PM
RCase13 you haven't gone back to working on your house ? Do still not feel up to it ?
#7
rcase13
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Posted 01 January 2015 - 09:05 PM
I have but held up with side pain. Spleen is still healing I guess. Will talk to doc at three month check up next week.
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#8
Tedsey
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Posted 01 January 2015 - 11:29 PM
Hi Billie! It's Tedsey. Happy New Year to you!
May we keep on celebrating new year after new year after new year, and so on. Grateful for the "risk" and sacrifice Dr Druker et. al. made so we "old-timers" have been able to see so many new years since dx.
So happy to be alive and living well (5 yrs post dx).
Happy New Year to old and new BIFs* on the board.
Tedsey
*Best Invisible Friends 
#9
hannibellemo
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Posted 02 January 2015 - 09:01 AM
Imaginary, Teds, imaginary! We're not invisible - Trey looks like a, ah, ah...Texas Union stamp, you look like Madonna (!), Billie (and many others) look like someone in the witness protection program and I look like a...dog. Hmm, maybe we should remain invisible! 
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#10
Billie Murawski
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Posted 03 January 2015 - 12:32 AM
Happy New Year Billie and all.
Billie, may your New Year's wish come true.
Sue
Thank you Sue, my wish is coming true, My husband is getting better everyday, Bless you and all your family 2015 will be a great year. Sincerely Billie
#11
Billie Murawski
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Posted 03 January 2015 - 12:38 AM
Hi Billie! It's Tedsey. Happy New Year to you!
May we keep on celebrating new year after new year after new year, and so on. Grateful for the "risk" and sacrifice Dr Druker et. al. made so we "old-timers" have been able to see so many new years since dx.
So happy to be alive and living well (5 yrs post dx).
Happy New Year to old and new BIFs* on the board.
Tedsey
*Best Invisible Friends
#12
Billie Murawski
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Posted 03 January 2015 - 01:01 AM
Hi Tedsey,
Oh it's so good to finally be able to talk to all my friends. I missed everyone so much. I could not get back online it took me 8 months. Now I just have to convince them I'm a girl! Under profile it says gender but it won't accept female.Oh well I figure eventually they will turn me into a girl or a butterfly, Actually butterfly sounds better. Than witness protection.
I bet your beautiful babies are getting so big. It happens so fast doesn,t it? My 2 precious grandsons are growing so fast I think I will have them call me aunt billie (not really I'm so proud to have such precious grandsons I love having them call me grama billie.) I just lie about all our ages. I hope you have been feeling good, and you and your family had a wonderful Christmas and a Happy and Blessed New Year. Love Billie
#13
Billie Murawski
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Posted 03 January 2015 - 02:30 AM
Imaginary, Teds, imaginary! We're not invisible - Trey looks like a, ah, ah...Texas Union stamp, you look like Madonna (!), Billie (and many others) look like someone in the witness protection program and I look like a...dog. Hmm, maybe we should remain invisible!
Pat
Hi Pat, I'm trying to get back to you but I have had way tooooo much wine. You would not believe the day I had today. I'll tell you about it tomorrow. At noon today I get a call from the social worker from where Ron is in rehab.They tell me I have to bring him home tomorrow before noon or our ins won't pay. Nobody even told me how to care for him or what help was available for him. Long story short 4 social workers trying to cover their asses because nobody showed up for work Dec.31 and read their mail. And our ins said I had 24 hrs to file an extension for his care.That was wed.and they called me today at noon and tell me I had to take him home tomorrow. I still don't know what happened to him. Anyway I think I have everything on hold, and those bitches thought they were going to scare me by telling me if I didn't have him out of there by tomorrow I would have to pay for his care $4000.00 a day. Or contact medicaid let them pay but I would put a lein against our house,plus take our savings it was a nightmare,luckily I called a lawyer for advice in case it became a long term rehab for him he should have 100 days of coverage before the gov't takes over. I'm so glad I worked all my life, and Ron spent a year in viet-nam in the jungles,then worked construction and fell off a roof 25 feet and landed on cement was in the hospital 4 months and then worked 22 years for the pa fish and boat commision until he could retire.
We both worked hard all our lives and never asked for anything and these 4 social workers are trying to cover their asses I don't think so, the sad part is how many other people fall for this because of fear. If 1 person had opened that letter on dec 31 I would have been notified and all this could have been avoided.. I'm so tired but I can't remember the last time I slept. So please everyone don't just talk to ins reps go straight to the top always ask to talk to the supervisor of claims. Sincerely Billie
#14
pammartin
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Posted 03 January 2015 - 05:57 AM
Give 'em hell Billie! Glad you have things moving in a positive direction. Prayers
#15
pamsouth
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Posted 04 January 2015 - 01:48 AM
Hi Billie, Remember me? Blessings for 2015 to all of us. I see most of the people I met on this board a couple of years, we are still alive! Been a heck of a journey, that's for sure, and we have lived to tell it!! Boy have I learned alot, especially about the health care system and insurance and providers, and yea and how to speak up to doctors if I need to. Take good care of yourself, PamSouth
PamSouth
#16
Billie Murawski
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Posted 04 January 2015 - 10:19 PM
Hi Billie, Remember me? Blessings for 2015 to all of us. I see most of the people I met on this board a couple of years, we are still alive! Been a heck of a journey, that's for sure, and we have lived to tell it!! Boy have I learned alot, especially about the health care system and insurance and providers, and yea and how to speak up to doctors if I need to. Take good care of yourself, PamSouth
Hi Pam,
Good to hear from you. I just put up a post about what we have to put up with our healthcare plan. They call all the shots. What did we pay for all these years? I hope you're feeling good. Billie
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