Hi, Cathy. . .
My numbers are something like this (my record-keeping hasn't been as good as it should have been in the past year. . .work is just about killing me).
9/17/09
0.200
12/7/09
0.090
3/2/10
0.059
5/11/10
0.054
8/30/10
0.100
9/27/10
0.027
11/20/10
0.147
4/25/11
0.002 (started Sprycel January)
6/28/11
0.008
8/1/11
0.002
11/11/11
0.003
1/3/12
0.060
3/20/12
0.000
6/12/13
<.001
10/9/13
0.000
1/15/13
0.000
4/10/13
detected
7/16/13
0.000
10/15/13
<.02
1/21/14
0.000
5/6/14
detected
8/12/14
0.000
9/26/14
0.180
Unfortunately, there are some issues with my numbers because for the first few years, it was not IS. . .so those numbers are pretty meaningless, except to compare with my own trend and also, my results came from a variety of labs, especially in the first few years. . .so again. . .the numbers are not particularly meaningful. I also do not have a starting number, as my initial onc only did a qualitative PCR test before I started Gleevec. I have my next PCR in December, and I'm getting a little anxious about it. After starting back on Sprycel (I was off for over a month because of pleural effusion and then the doc wanted me to have a battery of tests for lung function, because I was still having breathing issues) I did a few days of 100 mg before dropping back to 50. Did that without doc's knowledge. . .I just started getting really paranoid and wanted to give the darned Ph+ cells a kick in the butt.
Anyway. . .when I look at my numbers as a whole. . they don't look all that bad. And I'm a lot more comfortable now with the idea of not being PCRu, but being close.
Hope that helps!
Marnie (spelled like the Hitchcock movie about the psychotic killer, Marnie)
Not that my parents named me for that. . .
you are still under 1%
