I am a 54 year old female, recently diagnosed with CML. This is freaking me out because I've never felt better! I don't have any symptoms, other that a bout with night/day sweats, but I figure that was menopause related. My blood test results at an annual physical led me to hematologist/oncologist, and then to an expert for a second opinion.
My Doctor says it is in accelerated phase, based on the basophil%. He has suggested two options for treatment:
- Clinical trial of Ponatinib as first line treatment
I'm so confused about which course to take. I've received financial clearance from my insurance company for the Ponatinib trial, and my insurance and Novartis should cover most of the cost of Tasigna. So money is not the big issue here.
I'm hearing great things about Ponatinib, but the possible side effects are terrifying. Of course, Tasigna has side effects too.
I would really like to delay my treatment for a couple of weeks as this is really messing with my vacation plans (and my life in general!) . I'm wondering how risky it is to delay treatment?
I guess I have to sleep on this.