21 replies to this topic

[KFrazer]

My 20 year old son was diagnosed with CML 3 months ago.  He is taking Sprycel.  We live in PA.  I contacted my Representative about voting for this bill and he is actually a sponser of it.  Do we know when they will vote on it?  We are ok now because I work for the State and have a great Prescription plan that covers the cost of Sprycel except for a small copay.  What I am worried about is when my son turns 26 and has to get his own prescription plan.  Hopefully he will have a job that provides coverage but if he does not, does anyone know if you can pay for a presription plan that will cover the cost of Sprycel since he will be on it the rest of his life.

Thanks,

Kim

[chriskuo]

The idea of PA proposal is that the TKIs would be covered under medical rather than prescription.

 

If you buy a plan on the exchange, it would have to meet the state and Federal requirements.  In any case, there are limits on out-of-pocket expenses on exchange plans.