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Update at 24 Months


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#1 Tom1278

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Posted 03 August 2014 - 12:45 PM

Hi everyone, I just had my 24 month tests post-diagnosis.  I still haven't had a MMR, but I'm really close.  Doctor is fine with my results so far, especially since I have few to no side-effects on Gleevec.  I'm 35, diagnosed at 33.

 

I know the doctors are really emphasizing quick, deep responses -- but slow and steady works too, especially if you have a good quality of life on your TKI of choice.  I think the doctors are too quick to change medication at 3 months and 6 months these days.

 

Tom

 

Months Post Diagnosis

0

3

6

9

12

15

18

21

24

PCR - International Scale

145.0%

39.7%

5.7%

4.6%

2.3%

0.710%

0.411%

0.241%

0.161%

PCR Log Reduction (100%)

 

0.4

1.2

1.3

1.6

2.1

2.4

2.6

2.8

 


Diagnosed with CML in July 2012 (33 years old)

MMR since March 2015; E453K mutation

600mg Gleevec

 


#2 Trey

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Posted 03 August 2014 - 09:34 PM

Looks like a straight line decline.  Steady wins the race.






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