I used to be Sue, but now I'm sue1403989325. That seems a bit unwieldy, so I thought I would re-register with a new name. Does anyone know if I can do that, since my email address is apparently connected with sue etc.
Thanks,
Sue
Posted 19 July 2014 - 10:01 AM
I used to be Sue, but now I'm sue1403989325. That seems a bit unwieldy, so I thought I would re-register with a new name. Does anyone know if I can do that, since my email address is apparently connected with sue etc.
Thanks,
Sue
Dx April 2013, FISH 62, BMB not enough for PCR test; put on Gleevec 400;
August 2013, FISH 8.7;
Oct 2013, FISH 5.6
Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;
Feb, 2014 PCR 6.8
May,2014 PCR .149
Aug, 2014 PCR .015
Nov. 2014 PCRU
March, 2016 went down to 40mg Sprycel
Oct. 2016 stopped Sprycel for a couple weeks due to concern about shortness of breath. Echo showed mild PAH.
Nov 1 2016 resumed Sprycel 20 mg daily
Dec 2016 PCRU
March 2017 PCR 0.020
May 2017 PCRU
Sept 2017 PCRU
Dec 2017 PCRU
Posted 19 July 2014 - 12:13 PM
You could do one of several things:
1) Try again to do a password change on your previous user name. There is no apparent reason why you cannot use the old name. So click on "login" (NOT "create account"), then on the login page put in your old user name and click on "I've forgotten my password" and follow instructions
2) If that does not work, change your email address to a new one: click on down arrow next to your user name, then click "my settings", then click "email and password"
3) If neither work, contact Admin and request they change your user name:
http://community.lls...er/17395-admin/
Edited by Trey, 19 July 2014 - 12:16 PM.
Posted 20 July 2014 - 12:04 PM
Hi Trey,
I had already tried your first suggestion, and it didn't work. I did try suggestion #2, and that did not work either, so I contacted Admin. I did have periodic problems on the old system--I thought it might have something to do with the fact that my user name was only 3 letters. If that is the problem, I told them I would change it to something else.
Thanks for your help.
Sue
Dx April 2013, FISH 62, BMB not enough for PCR test; put on Gleevec 400;
August 2013, FISH 8.7;
Oct 2013, FISH 5.6
Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;
Feb, 2014 PCR 6.8
May,2014 PCR .149
Aug, 2014 PCR .015
Nov. 2014 PCRU
March, 2016 went down to 40mg Sprycel
Oct. 2016 stopped Sprycel for a couple weeks due to concern about shortness of breath. Echo showed mild PAH.
Nov 1 2016 resumed Sprycel 20 mg daily
Dec 2016 PCRU
March 2017 PCR 0.020
May 2017 PCRU
Sept 2017 PCRU
Dec 2017 PCRU
Posted 20 July 2014 - 10:23 PM
Hi Everyone, I used to be Adela, but I changed my user name to Miriam with a new password. When I try to sign in in username I type Miriam and my password. The computer sends me a message NO SIGN IN NAME ENTERED. I do not understand this. What is my sign in name? I thought it was Miriam. Thanks.
Posted 21 July 2014 - 10:03 AM
Just a guess: maybe the name change did not work. Try signing in as Adela with the new password.
Posted 21 July 2014 - 01:40 PM
HOw do you get a new Avatar?
Posted 21 July 2014 - 02:57 PM
I just uploaded a picture from my files. In the upper right hand corner there is a little down "arrow" next to your name. Click on it and go to My Profile. You should be able to add/change your avatar there.
Good luck!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
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