I was diagnosed on 1/14/14 and am on 100 mg Sprycel.
I've had some shortness of breath in bed when on my L side but when I roll over or sit up, it subsides. I've also had it when the humidity is high or when I'm walking up an incline. The doctor palpates EVERYTHING/listens to my lungs at every visit. I also have some eye puffiness and he told me to eat low sodium to reduce the edema.
My 2nd opinion doctor told me that the Pleural Effusion happens in 30% of patients on Sprycel and comes on slowly, so I am just being very observant and cautious about this.
My reg oncol said the most imp thing to know about the milestone numbers we all pray for is that they are decreasing. So I am practicing meditation to stay calm!!!! Walking helps also.
I recently had 2 instances of some redness on a finger and then a week later on the hand and wrist. I called, went for blood work and the doctor said it wasn't from Sprycel and didn't know what it was. But I do not regret calling or seeing the doctor. My blood work did improve in 1 week - red blood corps, white blood and platelets all increased. And the redness is gone.
So I think to sum this up, keep the communication with the doctor tight.
I wish you a very happy marriage! I can tell you are most thoughtful.
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue