I had a long detailed informational post about this subject and it has disappeared upon posted.
I apologize, but it is late and I am overwhelmed.
Since Christmas I have been I what might be considered the perfect storm for my condition. I contracted C Diff for three months and it was horrible. Then although my white cells are healthy numbers, they are far from healthy for immune. Unknown to me I also contracted a virus in my heart during this battle. After two VQ tests, numerous abnormal EKG's, CT scans, without contrast because I was I renal failure the local doctor decided to put me on steroids and thought that would clear up my problems Instead it raced my heart, caused more distress and further damaged the pulmonary arteries. I am seeing a lung specialist, heart, and pulmonary hypertension specialist within the next three weeks. The arteries carrying blood flow to my lungs are very damaged, I was told if I were 30is I would be fitted with stomach pump and I might live to 50's. I am 51, doesn't take much to do the math.
In all of this post, my main concern is to inform and request if you feel anything at all, please go to your doctor. I can no longer take the Sprycel, Gleevec has been in some studies where it not only helps the CML but it also has a profound effect on the severe pulmonary hypertension. Please, even if you think you are being a difficult patient, see your doctor. I should have been removed from the Sprycel at least two months ago, damage would have occurred but not at the rate it has progressed.
I have not posted for a very long time because life has been pretty regular and I have been going along and getting things done. In the words of the doctor, my life changed yesterday forever. I am not to pick up a place from the table, I am not to walk over a few hundred yards, I have a cane ordered, any physical stress blocks blood to my lungs and I cough like I am a 30 year smoker.
Please see your doctors, be glad it is nothing, if it is, and never believe you do not have the right to seek help. I waited, thinking it was minor, had I went in early I may not have the severity of the problems and perhaps I would not be listening to my life changes once again, but this time there is really no self help. If I try to exercise, the heart muscle overworks and eventually dies from trying to do it's job and cannot.
Thanks for reading and again, please seek help. There are so many things that can go wrong with these meds, they save our lives and that is a positive aspect, but they attack other parts of our body. I am removed from Sprycel forever. if I continue to take it my body will not tolerate the dosage, even a lower one past a few months. In this case, it is what it is.
Take care and God bless